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Thank you for visiting the Totally Hip Member's Story Books.
Have fun reading, and come back often to visit.


Eileen B - 04/17/98 16:57:53

Comments:
I received your e-mail and was delighted to hear about the support group and the newsletter.  Please add me to your list. Thanks! Eileen

Margie - 04/17/98 10:52:06

City, State, Country: Sweetwater TX
Age: 50
Sex: female
What is the cause of your hip problems?: ingury 17 yrs. ago
What is/was your profession?: retail sales
Comments:
I have been told to wait as long as possible to have surg. I have a lot of pain and cannot sleep at times . My doc says I am too young. After surg. will I be completely pain free? How long does the replacement last? What's in the future for total hips? Is it going to get better as far as the technology? Yes I have A Dr. I work for 2 Ortho. Drs. They say to wait. I say Owweeee.


Terry B- 04/16/98 10:36:37

City, State, Country: Cork Ireland
Age: 30
Sex: male
What is the cause of your hip problems?: osteoarthritis
What is/was your profession?: sales/farmer
Comments:
Going to see my surgeon on the first of May. I believe my operated leg is shorter than the other. What questions should i ask him or what action can he take to correct this. I do not fancy wearing a shoe lift and my other hip is fine. Terry B


Matt S- 04/16/98 05:51:49

City, State, Country: Australia
Age: 36
What is the cause of your hip problems?: AVN
What is/was your profession?: Science
Comments:
Dear People, I think that there needs to be a FAQ page. Hear is some info that will answer some of those questions as an easy read - albeit as learned from my own experience and reading as a young male with three young children. Firstly, the artificial hip wears out Not being living tissue it wears away as surely as do your tyres. The cementless type - of the many types available - that young people like me (36) will probably be fitted with, will last ten to thirty years depending on your level of activity and bod mass. However, when worn out, there is a considerably less horrific op. In my case, the polyethylene liner (a cup inside the permanent metal cup in the acetabulum) is slipped out and replaced - and in some cases so is the cobalt ball (it to is detachabl from the permanent shaft which is inserted down the centre of the femur). With each "reline", the ligaments that do nearly all the work to hold the hip joint together become more damaged, and so the joint becomes slightly less stable, ie. more likely to dislocate. Being a big bastard who does a lot, I am looking at a decade replacement regime. A second and more serious problem is the possibility of a non-successful out come. The reasons include: Dying on the table - an extremely small but finite chan e. Infection by MRSA - about 1%. You can become extremely ill. In some very rare cases it results in death. In some other very rare cases in bones, amputation is required . Non adhesion of the bone to the coated metal sometimes occurs - this results i more pain than before and possible replacement with a cemented prosthesis. You do not one of those unless you are older with slower healing capacities - they slowly come loose with time and need wholesale replacement and you can only have three or four f them because of the damage done to the bone. Lysis of bone tissue may start - your immune system may attack the wear particles that come off the prosthesis and in doing so cause destruction of surrounding bone tissue. This is serious and may result in having to have a cemented hip and/or drugs to tone down the immune system. The prosthesis may be put in at a slightly wrong angle (it is a very difficult op) and you may have a higher than acceptable chance of dislocation. Over time the bone around the op of the femur will weaken because the metal is so strong that it takes all the load, therefore the bone resorbs. This is akin to, but not quite the same as, osteoporosis. I hope that all this info is not now depressing you, it should not, since all of t, bar the last two points, are not common - you are on a good wicket being young, as most of these problems are for older people. Overall, you are likely to have a 98% chance of an excellent to good result if you are young. The health system here in Aus ralia is similar to the UK, but our waiting times are, so I am informed, a little shorter. However, any of the waiting times are almost an irrelevancy. The reason is that your surgeon (or specialist) can give your case what ever priority they deem necessary - you can be in that week if you are an acute case! I could hardly walk and needed crutches for long distances. As soon as I had left work on unpaid leave, I wrote a letter to my surgeon and told my story of woe. It had been my choice to put things ff for so long - it was psychologically difficult for me to accept that I was crippled (bit of a man's thing - shh) - I was in the following week. As for cost, I paid $0. Nice system here - all free, public! At the moment I am hobbling on the crook leg ore by the week. The new hip improves while the old deteriorates. You can judge the extent of your own AVN and the associated pain by looking at your X-ray or CAT scan and/or MRI. When the head of the femur is starting to collapse, ie. flatten out, you ill be in moderate pain but it will continue to worsen rapidly with the collapse. The best thing for the pain is a non-steroidal anti-inflammatory. Without it, sleep is but a memory. Being blind drunk works too. Post-op pain is no big deal, 'tis true - it simply hurts a hell of a lot for a few days, a lot for a week, somewhat for a month or two and it nags less and less until it is completely gone after about six months. I only used codeine for a week and paracet mol for a month. My best advice is to be quite physically fit before the op. Then in post-op do all the exercises almost continuously for months. My experiences in sport gave me the psychological tools to push straight through the pain of the exercises - it is almost like masochism. All in all, I am happy as a pig in mud with the outcome. In fact, I was in the surf just 8 weeks after surgery. Although, I must confess that I had a dislocation about a week after surgery - I do not know why it happened th ugh - I was just sitting there and, clunk! it fell out. It has not happened since. I am building a house in my spare time - up and own ladders, jumping off scaffolding, carrying very big heavy things and so on. I am just careful not to flex my hip so th t my knee is closer than about 70 degrees to my torso - this is about 90 degrees at the actual hip joint. This is because your spine can bend the other 20 degrees in addition to the right angle that the specialists will tell you is a maximum for the hip. did tell my specialist of a bloke I had had correspondence with, who at 2 years post-op can pull his knee onto his chest while floating in a swimming pool. The Doc's eyes watered as he cringed and intermated he did not like to hear of any loon courting uch dangerous behaviour. Email me if you want any more info, but be aware that I will be flying out next week (24th April) and won't return until late in July.


Gary G - 04/15/98 07:30:26
My
City, State, Country: Copperas Cove, TX
Age: 47
How many hip surgeries have you had?: none
What is the cause of your hip problems?: degeneration
What is/was your profession?: electronics tech
Comments:
Hello, I am Gary's wife. He is on the road with GTE and just found out today that he needs a hip replacement. Since he will have it done here at home, this on the road doc didn't give us much information. He has a new job starting in May - until October and a 5 year one after that. We need to know how long it takes to be able to go back to work - providing everything goes all right? Also - he is a bit overweight and reading through some of your letters I think that could be a problem? Any and all information would be appreciated.

Thank you very much



pat w - 04/15/98 01:25:52

City, State, Country: oxford,wi usa
Age: 62
Sex: female
How many hip surgeries have you had?: none
What is the cause of your hip problems?: arthritis
What is/was your profession?: school van driver
Comments:
I was finally after 10 years of doctoring and being treated for everything from hernias to spine and back problems,they finally decided that it was my hip,and if it hadn't been for your group I would still be doubting.When I read the letters I couldn't elieve my eyes. it was like I had wrote every letter I read.Here I thought I was the only one that had (groin pain) that is why I doubt that I had hip problems.Any way I seen the doctor today and they won't do anything for me till I lose a lot of weight because they are afraid of long recovery if I don't and they are afraid of not having the total benefit from the surgery if I don't and I can understand this I would like to know if anybody else had or has this problem? and if there is anyone from the group that is from wisconsin and if you know any good surgeons I doctor at the university of wi, hospitals and clinics. Well I'm going for it and going to see how much (baby fat) I can lose in a couple of months in the meantime I will keep up with all of your rec verys. Maybe I can find a doctor that can just stretch me out and then I would be taller and then I wouldn't be so fat!! I'm only 5'so every time I open my mouth I gain.T hanks for being here for me. I'm really frightened about the whole ordeal and I hope can with stand the stress it is causing me.


Beth D - 04/13/98 17:20:57

City, State, Country: Moore,SC USA
Age: 37
What is the cause of your hip problems?: Asceptic Necrosis due to chemotherapy
What is/was your profession?: stay at home mom
Comments:
I have had hip/leg pain off and on for the last 19 years, since I had chemotherapy for Hodgkins. The pain has greatly increased in the last year to where it hurt almost all of the time. I finally went to the doctor in March. He did an X-ray and told me that I had asceptic necrosis in my left hip and that it was starting in my right hip(I have no pain yet in my right side). A hip replacement is in my future. He suggested that I take Cosamin DS. I did so reluctantly. After 3 weeks of taking this, I no iced that the pain had greatly decreased. It has been 5 weeks now and I have almost no pain. It is wonderful. It will never be 100% but my hip/leg feel great. I highly suggest looking into this "nutritional supplement"


Terry B- 04/13/98 13:14:04

City, State, Country: cork Ireland
Age: 30
What is the cause of your hip problems?: osteoarthritis
What is/was your profession?: sales rep / farmer
Comments:
Had my left hip replaced on 30 May 97 Got a second opinion before i went for it. Just had stiffness in the morning---- i was not bad Now i must see my surgeon on the 1st of May because i have a limp. I think my leg was left short. Regards Terry B


maureen v- 04/13/98 12:25:48

City, State, Country: Waban, MA 02168
Age: 46
Sex: Female
How many hip surgeries have you had?: one 5/19/98
What is the cause of your hip problems?: Congenital
What is/was your profession?: MD
Comments:
How do I join this illustrious group? I am having my first replacement on 5/19/98 and I'm a bit apprehensive--any tips from all of you?


Eileen B- 04/11/98 03:40:33

City, State, Country: Bradenton Fl USA
Age: 73
What is the cause of your hip problems?: arthritis
What is/was your profession?: probation supervisor
Comments:
I had hip replacement surgery in December. did my exercises until recently when I had gall bladder surgery and had to discontinue exercises because of complications! I am worried. I have a pulling sensation in the right buttocks and imagine this is a muscle. The rest of your life, do you have to avoid bending down on the right side? So many questions???


MARTIN B - 04/10/98 18:40:44

City, State, Country: NORWICH, NORFOLK, ENGLAND
Age: 46
Sex: MALE
How many hip surgeries have you had?: ONE
What is the cause of your hip problems?: AVN
What is/was your profession?: GENERAL MANAGER
Comments:
I FOUND THE TOTALLY HIP SUPPORT GROUP INVALUABLE WHEN I WAS IN PAIN AND NOT SURE ABOUT WHAT AVN REALLY WAS. ALSO IT HELPED TO PUT MY MIND AT REST WHEN FACED WITH THR OF MY RIGHT HIP.


ferd r- 04/06/98 02:22:45

City, State, Country: pennsylvania
Age: 42
Sex: male
What is the cause of your hip problems?: avn - prednisone
What is/was your profession?: project manager
Comments:
it was easier to get around at your previous internet location. how come i don't show up on Prayer Rock, i'm having a left THR on April 10, 1998, Good Friday.


Bryan S - 04/05/98 18:44:57

City, State, Country: British Columbia, Canada
Age: 36
What is the cause of your hip problems?: Avascular Necrosis (Leg Perthes)
What is/was your profession?: Computer Technician
Comments:
Boy, am I glad I found this site! I had no idea such a group existed before this. I've had troubles with my right hip from the age of 5, when I was diagnosed with Leg Perthes disease. It was not caught early enough, resulting in the femural head being badly and permanently deformed. By the time I was 13, the various surgeries to correc the problem were all over and I got on with life as usual with only minor pain and fatigue. Two years ago that all changed and the pain has grown steadily worse ever since to the point now where I can barely walk with the aid of a cane. Last year several bone fragments were removed from inside the right hip socket, but it didn't alleviate the pain. It looked like it was time to look at THR as a serious option. The doctors gave me the usual run-around - I'm too young; I should wait 'til I'm sixty... I finally had enough of the games and told my surgeon that I needed to do something about the pain, and that if that meant a THR, then so be it. He told me to wait a other 15 years. In response I said, "For what? So that I can enjoy the quality of life THEN that I should be enjoying NOW??" He couldn't answer. I've done my best to keep the pain in perspective, but it's now invaded every part of my life. I can't sleep, I can't think half the time and it's affecting the rest of my family. I'm scared to death of the surgery, but the alternative - no surgery and on going, worsening pain - scares me even more. It's time to do something about it NOW! I finally found an excellent surgeon some 200 miles away in Vancouver at a major complex joint clinic. He was honest and straight with me. He didn't patronize me or hide any of the risks. On top of that, he's new in town and has a short waiting list. I wa n't sure just how short short was until I got a call from his office a few days later telling me that he had booked me in for surgery in 3 weeks! I go in on the 8th of April, 3 days from now... I haven't had long to worry about it and I'm sure glad that that is the case. As it is I'm near numb with panic. It's not the surgery I'm fearful of though - I've been through enough of those already. It's t e long recovery I'm not too keen for. Since they won't be using glue, I'll be off my leg for 3 months. I'm just trying to imagine myself doing nothing all summer long... Well, I'll leave it at that for now. I'll try to check back once I'm out and let all and sundry know how I'm doing. Bryan


Lisa H- 04/04/98 00:16:13

City, State, Country: emmonak, Alaska
Age: 40
Sex: fm
What is the cause of your hip problems?: osteoarthritis
What is/was your profession?: educator
Comments:
I first became a member in January of 97. I was so elated to finally network with other individuals experiencing the same. I obtained a wealth of information from the support group. I held off surgery till the surgeons said that if something wasn't done soon, I could do even more damage to my pelvis. So I finally consented and had a THR in my left hip at Beaumont Hospital, Michigan by Dr. Greene III. Everything has gone so well. I was back cross country skiing after 21/2 months. I'm still rebuilding my muscles in my left leg but I feel so revitalized. It feels great to be able to walk w/o pain once more! My Best to you all.




Jeanette C- 04/03/98 15:12:00

City, State, Country: currently living in Indonesia
Age: 31
Sex: female
How many hip surgeries have you had?: none. Considering one
What is the cause of your hip problems?: CDH
What is/was your profession?: teacher
Comments:
I have always had some pain in my right hip but in the last few years it has become almost unbearable. I cannot move the leg outwards at all and cannot walk more than about five minutes. I can still swim and ride a bike with no problems however. My right nee is now also suffering. I am flying back to England in June especially to see a doctor about what can be done. In the past I have always been told to get lost and come back when I'm sixty. Is my condition bad enough now for a hip replacement? Some of the stories here make my problem seem small but my life is considerably affected by this problem. Can anyone tell me if there are any alternatives to THR? Would I be better off waiting until I need a wheelchair? If I make this trip will I be told to get stuffed and be happy that I at least have a leg. I'd love to hear from anyone who can answer any of these questions or who has similar problems.


Alissa Anne L - 04/03/98 04:46:48

City, State, Country: Seattle, WA
Age: 27
Sex: Female
What is the cause of your hip problems?: Car accident
What is/was your profession?: Teacher
Comments:
Well, here is a second entry from me. Interesting event happened a couple of weeks ago. While getting my mail at school my THR popped out of socket, dislocation, extremely painful and it scared a lot of my students and staff. Luckily, there were a couple of people around to catch me. I was taken to the hospital, given a lot of drugs to put me out and then the doctor physically "yanked" it back into place. I don't remember any of the procedure. I am now off crutches, but extremely concerned about it happening again. The scary thing is, I wasn't doing anything except taking a step forward.


joyce f - 04/02/98 20:23:43

City, State, Country: Galveston, Tx USA
Age: 58
Sex: female
How many hip surgeries have you had?: 1 need the other one also
What is the cause of your hip problems?: AVN
What is/was your profession?: Director of Pre-school
Comments:
About 1 year ago I developed a severe pain in my right hip. I used crutches for 10 months before I had surgery. I tried the core decompression and a bone graft in May 1997 and it did not releive the pain so in November 1997 I had the hip replacement. I ave been releived of the terrible pain but it still hurts most of the time. But it is bearable and I CAN WALK without crutch or cane. I know I need the other hip done but I am just enjoying this time right now of freedom and mobility. I did have to take early retirement because my job was physically demanding. I MISS my little preschool children. I loved my job. I worked in preschool for 21 years up until last May 1997. I am married to THE MOST WONDERFUL guy in the world. We will have our 39th anniversary in August. I don't know how people make it through the hip replacement when they do not have the love an support I have needed this last year. I feel blessed with my husband and my 2 grown children. Our son age 24 graduated from Rice University 1996 and is in Seattle at the Univ. of Washington in the Math doctoral program Our daughter graduated from Tx. A & M and is a system analyst with Shriner hospital in Galveston. I am so glad I found you web site. I just went "on line" last month.


Kathy S- 03/31/98 01:31:33

City, State, Country: Cleveland, TX
Age: 30
Sex: Female
What is the cause of your hip problems?: Pigmented Villanodular Synovitis
What is/was your profession?: Elem. Teacher
Comments:
For starters, let me say that my first comment page was written by my husband who forgot to capitalize May. My second page was by me...a new member to the computer age. I hope this time I get it right. If you want to read my story, sit back and relax, o me it seems to go on forever!Three and one-half years ago, I was pregnant with my second child. Silly me, I thought the pain I was having in my hip was due to the pregnancy. The day I left the hospital after having my son, I knew it was something else I let several months go by because I didn't want to miss anymore school. I went to my first doctor and he didn't take an x-ray. He told me it was a back problem and sent me to PT. My therapist is the one who said "No way!" I went back to the same doctor who finally took an x-ray and told me that I had AVN and would have surgery in two days (decompression). His office called me the next day to say that I needed to have an MRI. All my records were then sent to Dr. Robert Bucholz in Dallas. He took more x-rays, aspirated my hip using CT scan, more CT, needle biopsy (OUCH!!!), before deciding that I probably had PVNS. I was then scheduled for a synovectomy that proved his dignosis. I already had bone and cartilage loss and was told that I would need a HR within five years. I have tried to live with pain for as long as I could, but have found it unbearable. I am now scheduled for my "first" THR on May 5. After reading many of the stories on this web site, I am terrified!!!! I do not like reading the stories about dislocation. I do have some questions though. Which is better - cemented or uncemented? Will I be able to sit and cross my legs like a "lady"? At age 30, I am really afraid of the surgeries to come. How many can I expect to have in my l fetime? I know that I have gone on and on but I have never had anyone to talk to about this that knows what I'm talking about. I would really appreciate hearing from anyone who could help answer my questions. Thanks!


Carol E - 03/30/98 21:39:47

City, State, Country: Minneapolis, MN USA
Age: 47
How many hip surgeries have you had?: First THR scheduled for 4-8-98
What is the cause of your hip problems?: AVN, steroids intermittently for two years in conjunction with chemo for acute leukemia
What is/was your profession?: Librarian
Comments:
For last month have been in "analysis paralysis" due to information overload on hip replacement options (cemented vs. uncemented) and other possible treatments (core decompression, vascularized free fibular grafting, etc.) Finally decided just to have th surgery and let the surgeon decide best course of action. Hoping for an excellent outcome, and for good options when revision is needed.


Arlene - 03/29/98 23:37:59

City, State, Country: San Diego, CA
Age: 58
Sex: female
How many hip surgeries have you had?: one
What is the cause of your hip problems?: osteoarthritis
What is/was your profession?: clerical
Comments:
Surgery on right hip was done Jan. 7, 1998 and I came home 5 days later. Surgery was successful and I am still recovering.


Greg I

 03/29/98 16:55:57

City, State, Country: New Hampshire
Age: 47
Sex: male
How many hip surgeries have you had?: 0 (first 4-8-98)
What is the cause of your hip problems?: OA
What is/was your profession?: High School Math Teacher

Comments:
I've been told that I didn't explain enough in my first posting, which was yesterday. So... I am currently scheduled for a THR of the left hip on 4-8-98 but, as I've been telling everyone, I can still back out. My doctors tell me that my hip pain is due to OA which resulted from an injury that must have occurred when I was 9 - 12 years old. I ave a bunch of (numbered) questions below, if anyone has the time to answer them with their opinions. (Again, thanks.) One thing that bothers me is that this surgery is one that is scheduled when the patient is ready, i.e., when the pain becomes too limiting! (#1) Should I endure the pain, i.e., am I being a wimp? (Male ego says I should be able to "tough it out".) My biggest fear (other than the "normal" fears of major surgery, is that I may be worse when this is done. I am mostly concerned with limitations because the hip may dislocate. (#2) Is this fear purposely exaggerated so people won't overdo it? (#3) Is t really quite difficult to dislocate an artificial hip, once it has fully healed? (#4) Will I have to live my life in fear of dislocating my hip? Although I have never been very athletic, it has been about 3 years now since I have been able to run even the 60 feet to first base with my kid's T-ball team. (#5) Will I be able to run at least that far, or is there absolutely no running on these hips? (I even used to jog 5 miles a day, and enjoyed it!) All of the furniture in my house is "normal", i.e., low. (#6) Will I eventually be able to sit on our couch again? (#7) Can anyone tell me if I will have to abandon my waterbed? (#8) While on the subject, how long before I'll be able to use a regular t ilet again, if ever? I'm sorry to have been so long-winded here, but I am quite preoccupied with the surgery. I forgot to mention that I am a high school math teacher and only a handful of my students currently know that I'm going to be out for a while. (#9) Does anyone hav any predictions on when I can go back to work? I'm 47 years old. I've lived a normal, healthy life. (For the past 20 years I've barely used my health insurance, since my annual physical has always been part of my deductable!) I'm married with three children (ages 13, 10, 8) and want to be able to g camping for most of the summer. (#10) Will I be able to crawl into a tent again? Thank you to anyone who can take the time to help me with these questions.


Greg I

03/29/98 02:23:31

City, State, Country: Barrington, NH, USA
Age: 47
Sex: male
How many hip surgeries have you had?: 0 (first is 4-8-98)
What is the cause of your hip problems?: OA
What is/was your profession?: High School Math Teacher

Comments:
I worry that I'll be able to do less after surgery than I can do now. If anyone has any thoughts on this, I'd like to hear them. I'm particularly afraid of dislocation, but I can't tell how possible/probable that is.


Misty N - 03/28/98 04:42:32

City, State, Country: De Queen, Arkansas--U.S.A.
Age: 17
Sex: female
How many hip surgeries have you had?: two
What is the cause of your hip problems?: injury--arthrits
What is/was your profession?: student(high school--11th grade)
Comments:
When I was 10 I fell down some stairs and tore cartlige in my knee. My doctor gave me a mobiolizer and some crutches then told me to stay off of it for a week. I still went to school-5th grade at the time. I was in gifted and talanted and we had a trip o go on. So, I was determined to go, crutches and all. The trip went fine. As soon as we got back to school it started to rain. My grandma was a teacher and she would take me home after school. She was so happy that I had made it okay, she really did 't think of the rain having any effect on my crutches. She let me off in front of her house, parked the car , came and unlocked the door, and headed on in the house. I followed right behind her. She had a lynolymn (plastic like tile) floor and my crutc es were wet and I sliped. I was still in my mobilizer--it kept my knee from bending-- so I ended up breaking off my left growth plate in my hip. The doctor put pins in it, but my body wouldn't accept them. The pins kept rubbing against the outside ten on on my leg. So, he took them out. A couple of years later my bone in my hip socket started to die. My hip bone is now arthritic and looks extremely deformed in my X-rays. The problem at hand is that when I rotate my leg a certain way--like getting o t of my car--- there is a little piece of bone that catches on my socket and I can't walk when this happens. My doctor wants me to wait as long as I can. "to stand the pain as long as possible" were his exact words. The reason being that I'm so young nd as you all know you can have only a certain amount of hip repalcements. I'm really scared and really don't know what to do. My mom is a really big help to me through all of this, she the one who told me about you guys. I take arthritis medcine and n rcotics for the pain-- don't worry my doctor perscribed them. I really would like your suggestions and your prayers not your pity. I don't know how long I can stand this. Thanks for your time. Misty


Bob H

- 03/27/98 19:55:26

City, State, Country: St. Charles,MO USA
Age: 71
Sex: Male
What is the cause of your hip problems?: arthritis
What is/was your profession?: SW Bell Tel.- Retired

Comments:
My left hip was replaced about 6 years ago and the right was completed on 2/23/98. I'm not completly mobile at this time. Still limited to using a walker to get around the house. Expecting to have similar 100% success with this one.


Renette - 03/26/98 22:50:02

City, State, Country: CA
Age: 21
Sex: Female
How many hip surgeries have you had?: awaiting first
What is the cause of your hip problems?: fractured acetibula
Comments:
This is an update of my previous message. I am scheduled for a THR of my left hip on April 17. I am a little aprehensive about it, but i have heard from many people that things will be fine.


Sheryl - 03/25/98 05:20:21

City, State, Country: Louisville, KY
Age: 45
Sex: Female
What is the cause of your hip problems?: Avascular Necrosis both hips
What is/was your profession?: Associate Pastor/Director of Music
Comments:
I was going to a doctor for arthritic pain. He treated me by giving me 2 steriod shots in my hips every month for two years. In 1994 I told him that my hips were hurting. Instead of ordering a X-ray he just gave me another pill to take. I became frust ated and sought another doctor's opinion. After that doctor took my medical history, he knew right away that I had AVN. It was confirmed through a MRI. My orthopedic doctor did a Core Decompression on both hips. It helped the pain for awhile; however, after a couple of years the ball of my right hip collapsed and caused me excruiating pain. In November of 1997, I had a THR of the right hip. Eventually my left hip may have to be replaced. Presently, I'm doing pretty good. The pain is not as constant and severe; although I'm still having pain in the groin periodically. I don't understand that. If someone has experienced the same I'd appreciate a response.


Joyce C

 03/25/98 02:05:55

City, State, Country: Frederick, MD USA
Age: 48
Sex: Female
How many hip surgeries have you had?: Anticipating first
What is the cause of your hip problems?: Congenital dislocation/arthritis
What is/was your profession?: Assistant Museum Coordinator

Comments:
This is an update on my letter from a couple weeks ago. I have a surgery date of April 29 for a total hip replacement on the left hip. Although there are concerns, I am encouraged by two of the older ladies who volunteer at the museum where I work. Bot of them have had THRs done by my surgeon and both of them are doing very well. I'll be glad to be able to walk as well as they do! Thanks for this website. Joyce


Scott A 03/24/98 21:56:28

City, State, Country: Bloomington, Indiana
Age: 50
Sex: male
How many hip surgeries have you had?: looking at the first
What is the cause of your hip problems?: arthritis
What is/was your profession?: accountant
Comments:
Now seems the time to make as much contact with experienced folks as I am able. Thank you for doing this!


Keith E

 03/24/98 17:01:06

City, State, Country: Rock Island, IL
Age: 53
Sex: male
How many hip surgeries have you had?: one
What is the cause of your hip problems?: AVN
What is/was your profession?: School Administrator

Comments:
In June of 1997 I had a THR right side due to AVN. I am now doing very well, however, I have been experiencing some joint stiffness. I have a very slight limp, but almost weekly I am doing better. I didn't think the recovery period would be quite so long


Allen B

 03/24/98 05:20:13

City, State, Country: Norwalk,Ct.
Age: 35
Sex: male
What is the cause of your hip problems?: football
What is/was your profession?: business owner

Comments:
I had a football accident when I was 14.My hips were susceptible due to a weakening from slipped apythesis. I had 4 surgeries(2 to put pins in and 2 to take pins out). During college and after I felt strong enough to compete in basketball leagues and weight lifting competitions. The last 4 or 5 years have gotten tougher and tougher. I had to give up all cardio activities. The only exercise I get is upper body weightlifting. I am now using a cane to walk. As I am getting married may of 99 and I want to walk down the aisle and dance at my wedding (and in the future play with my kids), I have opted for THR. I have interviewed 8 doctors in CT and NY. It was important for me to find the doctor that I felt most comfortable with. I am having surgery on 4/8 at the Hospital of Special Surgery in NY. Doctor Sculco is the doctor. He is going to do both hips at the same time. Has anybody had any experience with doing both at once?? Honestly, I was not nervous at all until I read some of the troublesome stories on this site (guess I needed a dose of reality). Well if anybody wants to converse please feel free. Also-after I get it done I will be happy to tell anybody who is going to go thru it what to expect. So glad I stumbled on this website. BTW a friend at my gym who is 57 has had both hips replaced and is on his 10 year anniversary and doing great (lifts more than me-however he does no cardio).


Dee - 03/23/98 14:12:32

City, State, Country: The Hague, The Netherlands
Age: 40
Sex: Female
How many hip surgeries have you had?: one
What is the cause of your hip problems?: Accident at home
What is/was your profession?: Housewife
Comments:
I had my accident 6 weeks ago, slipped on a tiled floor and fell very hard on my left side. Thought my wrist was broken but never suspected the hip... Was operated on that night with two screws inserted in the ball (sorry, my knowledge of the technical erms is sadly lacking!) I was very lucky - had very little pain but now I've been reading up on this AVN which my doctor just happened to mention in passing and that worried me. However, reading your various accounts in this site has made me put my little problem in perspective. I thought I was the only "young" one to have a broken hip (since the average age in the room at the hospital was about 87) and the thought of constant hip replacements over the next 30 years depressed me. I have always been extremely fit and healthy and having three little ones to look after (2, 4 and 6 yrs) I need full mobility! I went back for an Xray and checkup this morning expecting to be told to "throw down your crutches and walk" only to be told to put a little more weigh on the leg for the next three weeks - then go back for yet another Xray, so I was a little disappointed. However, reading what has happened to everyone else has jolted me out of my self pity. Now I'm going to have a glass of milk! Cheers.


Hal K

 - 03/23/98 05:09:14

City, State, Country: Danbury, Ct, USA
Age: 66
Sex: Male
How many hip surgeries have you had?: One - Right side
What is the cause of your hip problems?: Osteoarthritis
What is/was your profession?: Industrial Electrician, retired

Comments:
Conrary to many comments on the boards, I had THR done on 12/31/97. All has not gone well. Had I been informed of the magnitude of the problems possible I would not have had it done. I have had the hip dislocate three times! The pain is incredible! My Doctors are the best with loads of experience. A recent examination by a big name doctor at the Hospital for Joint Diseases in NYC, to whom they refered me for consultation, confirms their diagnosis. I am probably not a "healer", which means that the sc r tissue that holds things together is extremely slow to heal. There is no way of predicting this affliction. Each dislocation increases the probability that it may never heal due to stretched tissues. The normal six week recovery period has now turned i to a three month (after the most recent dislocation) "wait and see" episode during which I must wear a heavy brace. If things do not improve in that time a new joint will be needed - one that secures the ball deeper in the socket with resulting increased ear and shorter life span. Meanwhile, I'm still sucking down pain killers and getting very little sleep. Hope this puts some light on the possible outcomes for someone contemplating this procedure.

Iris C - 03/22/98 10:10:35

City, State, Country: Auckland, New Zealand
Age: 79
What is the cause of your hip problems?: Tripped Over
What is/was your profession?: Secretary/Typist
Comments:
I had a partial hip replacement in July 1997. Fell in the street and broke the small bone (forgotten it's name). Had an ulcer on the opposite ankle, so had a clash of interest regarding mobility. Got another ulcer, near other one and got blood poisoning. Then fell down a 2 metre bank at Xmas, nothing broken but huge haematoma on opposite hip and bruising in a band right around me. Think I blacked out as my blood pressure elevated around that time. The ulcers have healed. Now I have a lot of pain down t e front of my thigh (the side of the hip surgery) from the groin to the knee. I'm getting depressed from the pain. I can't remember if that pain was there before the 2nd fall or not. Have had X-rays recently which show no reason for the pain. Was told the metal rod in my thigh goes almost to the knee and that most rods don't go down that far. Am interested to know if anyone else has pain down the thigh 8 months after surgery. I've just started going to Physiotheraphy to see if that helps. The pain g ts me down and I don't want to take too many painkillers because I'm on so many blood pressure pills. I also feel frustrated at how my life has been restricted as I was quite sprightly before this happened. My husband died 4 years ago, and I live in a la ge flat adjoined to my daughter's house. She is writing this for me. If I hadn't had the ulcers, I could have moved about more often after the surgery, but that didn't happen, so no use presuming. The doctors I've seen (2) both can't give me any reason or the pain. Iris


David H- 03/21/98 19:56:54

City, State, Country: North Huntingdon, Pa.
Age: 44
Sex: Male
How many hip surgeries have you had?: one
What is the cause of your hip problems?: Arthuritis
What is/was your profession?: Sales
Comments:
Had mine left hip replaced July 3,1995! After 6 years of suffering and just putting the operation off. Praise God no more pain and I can walk without a limping.

 

Vicky - 03/21/98 15:54:00

City, State, Country: Edgerton, oh
Age: 43
Sex: female
How many hip surgeries have you had?: none
What is the cause of your hip problems?: osteoarthritis
What is/was your profession?: physical therapy aide
Comments:
I am facing my first thr on April 21 and needless to say I am very scared. Currently when I walk it is bone on bone, so something has to be done. I have worked with many people that have had it done, but it is different when it is you. I dearly enjoy the letters that I have read.. I would appreciate any letters of encouragement from anyone. Thank you. Vicky


Dazny D - 03/19/98 06:05:29

City, State, Country: Baton Rouge, La. USA
Age: 35
Sex: Male
How many hip surgeries have you had?: None. Need Advice
What is the cause of your hip problems?: AVN - Asthma/Cortisone?
What is/was your profession?: Radio GM/Teacher (IS)
Comments:
I've just been given results of my MRI which indicates Stage 1 Bi-Lateral AVN. My Femoral Heads remain spherical without joint abnormality. My Doctor says that a core bone decompression should be done on both hips. I see VERY FEW letters that say encouraging things about this procedure. I'm currently undergoing Physical and Massage Therapy. I'm a Big guy 6'2 and 250 pounds. The Dr. is a little worried that at my BIGNESS, I might fracture a core decompression and then I would be in BIG trouble. I've considered trying to put off the core d compression until School ends in June (so I can keep teaching) Should I? Should I try to go on a massive diet between then and now? Does AVN ever DEGRESS? The Orthopedist has performed 4 (FOUR) of these decompression procedures. Is that enough? PLEASE HELP ! I have a baby girl and another child on the way, and I'd like to be able to play with them (and SKI with them someday) Thanks!!!


Cindy R- 03/19/98 02:04:18

City, State, Country: Stoney Creek, Ontario, Canada
Age: 48
Sex: Female
How many hip surgeries have you had?: One
What is the cause of your hip problems?: Legg-Calves Perthes
What is/was your profession?: Real Estate Agent, Executive Secretary
Comments:
I was diagnosed with Legg Perthes disease at 10 years old. Spent most of my life in pain, but it just becomes a way of life. I had some surgery 22 years ago to help with movement but I developed a staph infection and was told I would never be able to have a THR. One day a lady at my gym saw me walking and knew what was wrong and we began talking and she had the same problem with infection but had a successful THR.I found a surgeon who would take a chance and had my surgery a year ago. It wasn't cemented i so I'm still having some "settling in" also, problems from the rest of my body from the years of having one leg 3/4" shorter than the other, trust me I'm not complaining . I've been given a "gift" I never thought I'd have and I thank the Lord. Thank you Linda for this website, it's great!!!
 

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