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7/28/98 01:48:10

Name:
Chris W
   
Location:
Aberdeen, Mississippi
Sex:
male
Age:
26
Reason for Hip Problems:
rheumatoid arthritis
Comments:
Hello, I had my hip replacements when I was 19 years old.  was the youngest person in Ms. to have it done. I'm doing pretty good right now. My doctors took me off the gold shots about three months ago and I haven't had any pain lately that's kind of funny before I had pain all the time. The only problem I have now is that my leg muscles are really tight!


07/24/98 16:39:44

Name:
Terry B
   
Location:
Cork Ireland
Sex:
male
Age:
30
Reason for Hip Problems:
osteoarthritis
Profession:
sales agent
Comments:
It is now 14 months since my hip -replacement and I am 100% perfect although it took a full 12 months to achieve this. I was very young to go for thr and I was no too bad before it but a good surgeon is critical


07/20/98 18:54:18

Name:
E.R. F
   
Location:
Los Angeles, CA
Sex:
male
Age:
40
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
none
Profession:
high school math teacher
Comments:
I was diagnosed with AVN of my left hip in march of 1998. I initially started feeling pain in May of 1997. I first noticed there was something wrong when I couldn't sit for long periods of time. I then noticed I started to walk with a limp in December f 1997 and was experiencing excruciating pain in my leg especially when I would sneeze. My HMO ok'd a visit with a specialist who confirmed what my primary physician suspected, which was AVN of the left hip. Now my problem is to get the courage to go through with the surgery. I have many questions especially how to choose the right surgeon to perform the operation. My family and friends are hounding me to get this done and over with and I'm getting very annoyed with them. Can someone advise me as to w at are the correct steps and their order involving THP?


07/20/98 16:14:46

Name:
Dave H
   
Location:
Germantown, Maryland
Sex:
Male
Age:
42
Reason for Hip Problems:
AVN
Profession:
Systems Engineer
Comments:
I had a decompression on the left hip, Feb/97 and THR on the right side 4/29/98. It is almost three months now and am looking forward to spending the rest of the summer riding my bicycle. When I look back at how long I put up with the Daypro compared to t e results of the THP, I should have had it done alot sooner .. would have saved myself alot of pain.


07/07/98 06:44:47

Name:
Carl P
   
Location:
Torrance, Calif
Age:
69
Reason for Hip Problems:
cup arthoplasty in 1964 is in need of revision to THR according to dr., but won't do for at least a year
Profession:
attorney
Comments:
This is just to change my e-mail address--enjoy reading the comments of all your readers and contributors, but there are some real horror stories out there. My cup has served me well for 34 years, and not anxious to replace with a prosthesis that limits m mobility and is subject to dislocation. But there are days when there is a lot of pain on walking.


07/06/98 19:42:56

Name:
Craig D
   
Location:
Denver
Sex:
Male
Age:
42
Reason for Hip Problems:
AVN
Profession:
Fleet Manager
Comments:


07/05/98 23:37:03

Name:
Linda M
   
Location:
Tennessee
Sex:
Female
Age:
51
Reason for Hip Problems:
avn ?
Number of Hip Surgeries:
0 to date
Profession:
Retired-Bellsouth
Comments:
Recent diagnosis bilateral avn-- need thr on right side soon and left side beginning to show deterioration also. Have been advised by Duke Medical my right hip too far gone for bone graft and thr is only solution, however my left is early stages avn and option for graft now with good possibility of permanent repair. I have accepted both as good solution but which to do first. Has anyone out there had to make this kind of decision ? HELP

06/30/98 15:29:15

Name:
Greg K
   
Location:
Ohio
Sex:
Male
Age:
42
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
2, 1 bone graft, 1 THR
Profession:
Manager
Comments:
Update to anyone interested; After a somewhat quick but hopefully successful recovery from the bone graft surgery on my right hip that I wrote about earlier, I had a THR of my left hip on 6-23-98 at about noon. I got home from the hospital on 6-26-98 at about noon after the doctor felt t things went real well for me in surgery and in therapy. Although it is now Tuesday the 30th I am just now feeling like getting up and around to do things again. I am using a walker with a weight limit of 40-60 lbs. on the left hip for now. I will go in after three weeks (7-13-98)to have the 29 staples removed and then again at 6 weeks post-op to have the first X-Rays taken to see how things are healing up. The pain and discomfort from the THR surgery are more intense than from the bone graft surgery earlier, but I am told that I will be up and around a lot sooner this time. I was allowed no weight bearing for 5 weeks after the bone graft), so already I am farther along with this recovery. Now if I could just get the pain to go away enough to get comfortable e, things would be peachy! I will have a few visits from a nurse at my home and about a week worth of visits from a therapist. I live alone but my mother has come to help me with things as I recover (I don't know what I would do without her!) This is definitely not something that one can recover from on their own, no matter what they think. I have received a few letters of support which are greatly appreciated, thanks again.


06/29/98 03:52:22

Name:
PAUL P
   
Location:
East Dublin, Ga.
Sex:
male
Age:
48
Reason for Hip Problems:
??
Number of Hip Surgeries:
8 4 each side
Comments:
Been there, done that, got a extra total hip in the cabinet.!!!

 
06/29/98 01:29:47

Name:
Connie
   
Location:
Maryland
Sex:
Female
Age:
43
Reason for Hip Problems:
Congenital Dysplasia
Profession:
Supervisor
Comments:
I had a left THR on Nov. 17, 1997. I am doing very well, except for some intermittent thigh pain. Having this surgery was the best thing I ever did for myself. I wish I had done it sooner, but was advised to wait at long as possible because of my age. Consequently, my quality of life was quite limited because of pain and immobility. I now have a new lease on life! My advice to those contemplating this surgery--if you are concerned about the lifetime precautions or the inability to play some sports, e c., then you're not ready for this surgery. When the pain gets unbearable, you'll do anything for relief and then you'll be glad you did it. All the best to everyone. I enjoy the support this group provides, and I pray for God's healing for anyone suffering from hip problems.


06/26/98 09:49:01

Name:
D. Stuart M
   
Location:
4, Ashgrove Avenue, Gourock, Scotland. PA19 1DE
Age:
46
Reason for Hip Problems:
none (yet)
Profession:
College Lecturer
Comments:
I am very grateful to find your site. I've copied your main set of pages and am sending them to my mother. My mother is 83 and has had severe pain in both hips (one more than the other) as long as she can remember. After recent X-rays she has been told she needs BOTH replaced! The Health Service here has a 7 month waiting list for each operation. She has an appointment with the surgeon for examination to establish the urgency or otherwise for the operation. She lost her husband (my father at 81) two years ago after he suffered a series of disastrous left knee replacements, the first of which was so seriously infected that he almost died, all the following were still infected. After 5 years of operations - replacements, spacers, times with no knee, bags of pills every day, permanent antibiotics and virtual immobility during those years - he died. Understandably she is not keen to submit herself to the same scenario. I guess that she and the rest of us (the family) are all questioning whether it will be beneficial at her time in life, to undergo the trauma of a series of at least two major operations. Would she be better off to find effective pain relief for the rest of her life, and avoid all the trouble? If you have any comments please feel free to contact me by E mail or by post.


06/24/98 05:20:13

Name:
Gregory H
   
Location:
Los Angeles area
Sex:
male
Age:
50
Reason for Hip Problems:
Ankylosing Spondylitus
Profession:
Teacher
Comments:
Just had my left hip replaced on 6/17/98. Doing as well as expected given that it is MAJOR surgery. No pain in hip (like night and day). I got a cement-less procedure since the doctor suggested theoretically it should last longer. It means a longer recoup time with no load bearing for 4-6 weeks. The hip feels stable and I am up and about cruising in my "walker". It really helps not to be over-weight and to have good upper body strength. I'm looking forward to the incision healing and the stitches being taken out so that I can start swimming and doing pool exercises. At this time I am really happy with the results given the year I spent painfully hobbling around with a cane. The other hip has problems and I will eventually need to have it replaced. I will definitely not wait as long as I did for the first. Would love to hear from persons with AS, have done THR, and have any wisdom from your experiences.


06/24/98 01:52:23

Name:
Robin M
   
Location:
Seattle, WA
Age:
37
Reason for Hip Problems:
Rheumatoid Arthritis
Number of Hip Surgeries:
2 and hopefully no repeats!
Profession:
Disabled RN
Comments:
It brought tears to my eyes to see your website - I have never known anyone who has gone thru these surgeries except for me....another arthritis patient referred me to your site. Thanks...it will help others.


06/22/98 05:31:52

Name:
Jack S
   
Location:
Indianapolis, Indiana
Sex:
male
Age:
27
Reason for Hip Problems:
avn/prednisone
Number of Hip Surgeries:
2 core decompressions/1 thr
Profession:
buyer for a tool rental co.
Comments:
I was diagnosed with Hodgkin's disease in Jan. 96 I was given high doses of prednisone as part of the chemo therapy. In Nov. 96 I finished chemo and radiation therapy and the cancer was in remission (and still is thank God) but just a couple of weeks after hat I was having severe pain in my legs to the point that I couldn't even walk. The doctor said it could be AVN caused by the prednisone but it was a very rare occurrence. Well it was avn, doctor suggested we try core decompressions because I was so young so he did core decompressions in both hips at the same time and I was in a wheelchair for 4 months. But soon after I was able to walk again I was having the same pain and it gradually got worse. I had my left thr on January 16th.,1998 and it is doing great an I hope to have my right thr done in July. After that I hope to stay out of the hospital for a while, it's been a long 2 years.


06/21/98 11:32:59

Name:
Dave W
   
Location:
Washington, NC 27889
Sex:
Male
Age:
62
Reason for Hip Problems:
Arthritis
Number of Hip Surgeries:
One
Profession:
Education
Comments:
Had a THR of the left hip in January and have been playing golf 3/4 days a week (walking). Three weeks ago I began to jogging (slowly) about 1/2. You see I have been a runner for years -- Boston Marathon and many others. The THR was the best think I ha e done since marrying my wife - Audrey. More later. Time to ride the stationary bike.


06/20/98 19:03:33

Name:
Annette B
   
Sex:
Female
Age:
49
Reason for Hip Problems:
Prednisone
Profession:
retired
Comments:
I've undergone two kidney transplants in 20 years. Prednisone has caused right hip to deteriorate.

 
06/20/98 06:54:39

Name:
Joe B
   
Location:
Jackson, TN
Age:
40
Reason for Hip Problems:
AVN..unkown cause
Number of Hip Surgeries:
0...yet
Profession:
Respiratory therapist.
Comments:
I was glad to find your site. I've been looking for something like this, I knew there had to be others in the same boat as me. Anyway, your site looks great! Keep up the good work.


06/19/98 16:50:23

Name:
Kristina
   
Location:
Denver
Sex:
Female
Age:
28
Reason for Hip Problems:
congenital/AVN
Profession:
Student
Comments:
I believe it is so valuable to be able to share personal experiences with hip replacement surgery. This is a wonderful support group that has answered many questions for me. I'm happy to be a part of it!

 

06/12/98 21:26:53

Name:
Jackie S
   
Location:
Devon, UK
Sex:
Female
Age:
59
Reason for Hip Problems:
Juvenile Stills Disease
Profession:
Organizer
Comments:
My hip problems stem from having Stills Disease at the age of 6. Stills Disease is Juvenile R.A. The doctors advised waiting for hip replacement as long as possible, in case the replacement hips wore out and were impossible to replace again. Finally had both hips replaced in 1974. It was wonderful to be without hip pain for the first time I could ever remember. I was out to work three months later in a new job and tramping across the countryside in my holidays. It was about 18 years later that the hips needed revising, and I had one done in 1992 which was not successful, dislocated badly and as again revised in 1995. It is now OK, though not as strong as the first one. Special exercises have strengthened the muscles around the joint now to hold it in place. The right hip was revised in 1994 and is great. Both my new hips are Cadcams an cemented and were done at the National Orthopaedic Hospital at Stanmore in the United Kingdom. If I can help anyone with information or advice please email me. Love to you all.


06/12/98 21:08:43

Name:
Timothy G
   
Location:
Gloucester Ma.
Age:
37
Reason for Hip Problems:
AVN
Profession:
Class 1 Trac. tral.
Comments:
I am new to the computer world, not even out of my three month course yet, but getting the click of things. I was so ecstatic when I found this page, I had no idea that so many people were kind of sharing the same life style as I. Not that it is a happy style. My whole life seem to crumble before me on or about,Feb.1,1997, Dr. M.P.Gilligan, had diagnosed me having, "AVN", I had no idea that this kind of thing existed or even what is was . Dr. Gilligan quickly briefed me on how my life was to change forever. Dr. Gilligan is a young but a good orthopedic surgeon , so I've been told through countless contacts. Being young is good because they have just came through medical school and know all the latest technology. This brings me to my first surgical procedure. Being so young myself and being diagnosed with, "AVN", in both hips, Dr. Gilligan did not want to just do, "THR", total hip replacement in both hips . They now have what they call, "Bi-Lateral Hip Decompression", which consists of drilling 100 centimeter holes up the femur to the hip head then inserting Bone Graphs ,100 centimeters long in to the bored holes. This may not be exact by my wording but you get the idea, this procedure is not much different to, "THR", right down to recovery & the scar, a d it takes one year to determine if it took or not. This procedure worked in the left but not in the right bringing me to "THR" . When I approached Dr. Gilligan and asked about information , and I think I should get a second opinion, he backed out and said," I don't feel comfortable doing this r placement anyway ",I was beside myself, I mean not to doubt any doctors ability, but concern for myself, my family , & why me what on god's green earth did I do so wrong to be given this ?? After going to my primary care physician & wondering will I get beyond this, I was relieved to know a Dr. Steven Murphy out of "Boston Orthopedics", was eagerly waiting to see me. A very quiet but down to earth kind of guy wanted to get the b ball rolling and now. Feb.11,1998,I was scheduled for surgery, but unlike Linda B. two weeks prior to surgery I had to donate a pint of blood each week for surgery, so I had two pints in the refrigerator along with my PEPSI for any kind of complications. This t me was a great relief knowing I did not have to risk getting any new or old disease, especially, "HIV". You know Murphy's law, "If anything can go wrong it will and at the worst possible moment", well it did. I had come down with a sinus cold less than one week prior to surgery, but I refused to let it get me down . I think I bought every cold medicine known to man that last couple days & beat it, but I still had minor symptoms the day of preop. Knowing this the anesthesiologist put me under just enough to where I did not know my own name & surgery went as well as could be expected. Surgery took almost four and a half hours, pos op. was not fun, as soon as the anesthetic wore off I was quite sore, but the hospital wasted hardly anytime in getting me relief. You have to expect some pain after, I mean it is not every day you have a major joint replaced in your body. Learning to walk again is definitely the hardest part of the whole thing, especially when it is the very next morning , laying there hitting the button on your pain control you think as your drifting back to sleep there is a GOD, just then off in deep space you here ,"wake up...hello are you awake , hey, hey," I mean does it look like I'm awake ? Anyway , you gain composure back thinking every thing is ok and hey, where is that breakfast anyway I'm starved. "I'm not the one that brings breakfast, I'm the Physical Therapist", first response ,"A.H.H.H.H.H.H.H.H."You want me to what?? Walk, are you sure you have the right patient? But you know what, taking that first step was alot easier than I had thought. Maybe it is just the fact that you know what just happened to you, but hey look at me I am actually walking , not to far at first but, "WALKING". Feb.14,1998, "Are you ready to go home?", no I was not ,but being out of work already one year I had to have medical coverage and MASS HEALTH, was it and they do not want you in the hospital any longer than they think not what you need but, hat they think. And being on Mass Health some of the staff in the hospital let you know your not important, but that is another story. Feb.16,1998,3:00 in the morning I start to panic, my leg from the hip down is literally the size of a telephone pole, sore, I think it was the heat generating out of my leg that was the worst, back to the hospital "Addison Gilbert" hospital this time. Loaded me up with Morphine and back to "Beth Israel Deconnes", in Boston. which is the hospital where I had surgery, sorry I did not mention this before but this hospital is nothing to shout about. That afternoon I was put through the worst test I have ever experienced in my thirty-seven years on this great earth. This test is called an "Aspiration Test " this is where they probe a needle, that was quite large I might add, into the leg a d hip joint to see if they can find any fluid that is causing an infection. Nothing was found and I had to endure two more days in the hospital, until the swelling was going down , not gone but going down. Back home on the 18th late afternoon, just the same l of my children from a hug never felt sooo good, lets not forget the wife who has been beside me the whole way, "Thank you Babe, I LOVE YOU, thanks for being you", six weeks , six weeks of Therapy, Bloodwork, cumadin, which I did not like taking at all Lind , I have to agree that is one medication I do not like, through all this I have to thank the VNA out of Lynn Massachusetts, the nicest caring people I have ever had the pleasure of meeting, if you need home care I highly recommend these people. But they w re cut short due to complications I was still having, the therapy was not helping it was causing me more pain and the VNA thought it be safer to discontinue til further instructions from my doctor. Dr. Murphy had scheduled more x-rays to see if everything as in it's proper place and they were, which brings me to now almost 18 weeks post-op and still having problems. I have been using the Gaurdian Crutch, which wraps around your forearm, since post-op with Dr. Gilligan and still don't trust my right hip, it still pops, cracks and seems to give out on me whenever. All Dr. Murphy says is," Give it another six weeks", only this time at the end of the six weeks he wants to cut me open again. Linda or anybody do you have any suggestions, open to any and all input. PLEASE HELP!!!!!! I still have my sanity which is half the battle, only looking to live comfortable again.  Timothy F. G


06/07/98 17:18:20

Name:
milton n
   
Location:
beaumont texas
Sex:
male
Age:
71
Reason for Hip Problems:
avn
Number of Hip Surgeries:
none yet --maybe in august
Profession:
retired
Comments:
enjoyed reading your letter on the subject. will try to get back later .please feel free to e-mail me if you would like to.


06/05/98 02:22:52

Name:
Jan P
   
Location:
Mandan, ND
Sex:
Female
Age:
44
Reason for Hip Problems:
AVNecrosis
Number of Hip Surgeries:
One
Profession:
Human Resources
Comments:
I had my left hip replaced on 4-l3-98 and returned to work part-time on 5-13-98. As of June lst, I went back full-time. Cannot believe what a difference this surgery made......my energy level is remarkable since the pain is gone. I originally injured t e hip waterskiing. I use a cane for long distance walking but am pretty much on my own, strengthening my leg to eliminate the limping. I also enjoy this support group - it's fun to compare notes! Thanks!


06/04/98 01:37:35

Name:
Cinde L
   
Location:
So. California
Age:
45
Reason for Hip Problems:
Broken at age 15
Profession:
Office Manager
Comments:
I broke my hip when I was 15, it was pinned together until I was 22, then the pins were removed, due to pain. Then I had a THR when I was 23 years old due to AVN and pain. My THR is glued in has lasted 21 years, and I expect to have it redone in the next ear or so, I believe I have worn out the socket.


05/31/98 17:21:33

Name:
John S
   
Location:
Waldorf, MD
Age:
60
Reason for Hip Problems:
Osteoarthritis
Profession:
Computer Sales/Service
Comments:
Surgery scheduled for 6/11/98 I appreciate your information and tips for THR. Thanks Again, John


05/31/98 05:18:27

Name:
Greg K
   
Location:
Ohio
Sex:
Male
Age:
42
Reason for Hip Problems:
Avascular Necrosis
Profession:
Mfg. Mgr.
Comments:
I am currently recovering from a fibular bone graft on my right hip and am scheduled for a THR of the left hip on 6/18/98. You have a very interesting web site and I'm sure I will visit often! Thanks :)

 
05/30/98 18:15:11

Name:
alan m
   
Location:
TX
Sex:
MALE
Age:
33
Reason for Hip Problems:
TUMOR
Profession:
CEO
Comments:
FOUND YOUR SITE HELPFUL
 

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