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09/29/98 19:15:55

Name:
Mary Jo
   
Location:
Illinois
Age:
54
Reason for Hip Problems:
Current-A BAD FALL
Number of Hip Surgeries:
2 as a child
Profession:
RN-SURGERY
Comments:
Can you explain the pain to me in avascular necrosis?


09/29/98 04:05:03

Name:
Judy W
   
Location:
AOL
Age:
56
Reason for Hip Problems:
steroid usage for asthma
Profession:
day care supervisor
Comments:
I had my hip replacements 3 months apart. It is so nice to be doing "normal things again.


09/27/98 20:34:00

Name:
MILTON N
   
Location:
BEAUMONT TEXAS
Sex:
MALE
Age:
71
Reason for Hip Problems:
AVS
Profession:
RETIRED


09/26/98 13:10:02

Name:
Ginny
  Location:
NJ
Age:
56
Reason for Hip Problems:
congenital hip dislocation
Number of Hip Surgeries:
none yet
Profession:
teacher
Comments:
I am still trying to decide when it is time for my bilateral thr. I don't have as much pain as many of you but I do have limited motion. I could never sit Indian style and I can only move my knees about 6 inches apart. I can't bring my left knee up to my chest but can the right one. I have difficulty tying my left shoe and I have difficulty picking things up off of the floor. I can walk maybe 6 city blocks before I have to sit down. When I go on vacation and have to do a lot of walking I usually choose to sit on a bench and let my husband go see the sights. I went to a show and sat in the mezzanine in a cramped position and had a great deal of difficulty walking back to the car. I do take Ibuprofen (800 mg) twice a day. This does help. I never wake up at night with pain. I never have pain when I sit but I find myself wanting to sit more often. I am a teacher and standing for long periods of time can be a problem but I've become leaner or I sit a lot. I also lean on the railing when I go up the steps mainly because I've been experiencing pain in my knee which may be attributed to my hip. I'm 56 and I had congenital hip dislocation as a baby. I was in a cast and then brace. But it wasn't discovered until I was 18 mos. old. My question out there for anyone is have you experienced these problems and do you think my limitations would be better after thr. I also walk with a limp or maybe a waddle. I've seen a rheumatologist and he said my left hip is totally destroyed and my right hip is well on its way. Both hips have OA. I saw a surgeon who said the time to have surgery is totally up to me. Nobody ever has to have THR. He will also do a bilateral thr at the same time which seems to be the best way to go, although I haven't heard of many people who have both done at the same time.


09/26/98 05:57:05

Name:
Phil W
   
Location:
Santa Barbara, CA
Sex:
Male
Age:
37
Reason for Hip Problems:
AVN (sports injury)
Number of Hip Surgeries:
0_till 10/21/98
Profession:
Engineering
Comments:
I am so thrilled to have stumbled upon this web site. Great job! It couldn't have come at a more opportune time for me as I am scheduled for surgery next month. This is truly a great use of the internet. The vast wealth of information that can be obtained is astounding when people working together make it happen. Thanks Linda for being inspired to do this and give this gift to the world. And, thanks to all the participants who have given this site LIFE and HOPE! God Bless you all. Thanks!


09/22/98 20:21:22

Name:
Eva-Marie
  Location:
Brooklyn
Age:
31
Reason for Hip Problems:
see below
Number of Hip Surgeries:
see below
Profession:
see below
Comments:
Hi everyone. I just wanted to thank those who contacted me and tell everyone that my severe pain has subsided. It is amazing how it comes and goes with the weather. This is truly an amazing site and I am glad that I found it when I needed it most. Thank you so much. see below for my story)


09/22/98 03:05:02

Name:
Elise L
   
Location:
Ottawa, Ontario
Sex:
Male
Age:
60
Reason for Hip Problems:
Arthritis
Profession:
Fireman
Comments:
Hi! I've completed the info on behalf of my friend Baz, except I've used my own name since he doesn't have a computer. This site is an excellent guide for people like Baz, who is going in for HR in 3 weeks. He and his wife don't know to expect, so this is a tremendous help for them. Keep up the good work, and God bless! Elise


09/21/98 17:50:25

Name:
Rob M
   
Location:
Cincinnati, Ohio
Sex:
Male
Age:
42
Reason for Hip Problems:
ostheoarithis
Number of Hip Surgeries:
one
Profession:
industrial sales
Comments:
good to know not alone


09/20/98 13:24:31

Name:
Lou
   
Location:
Hartford, CT.
Sex:
Male
Age:
32
Reason for Hip Problems:
Auto accident
Number of Hip Surgeries:
Three
Profession:
Accountant
Comments:
First operation was in 12/96 my right hip was pinned and my second operation was in 3/98 to remove the pins and my third operation was in 4/98 for a total hip replacement


09/20/98 03:41:02

Name:
Robin D
   
Location:
Southern California
Sex:
Female
Age:
Over 55
Reason for Hip Problems:
Probably congenital
Profession:
Teacher
Comments:
Linda - This is the first time I have visited your new site. How great to see the scanned photos. I have not gotten any e-mail in over a week so I thought maybe I had missed something and decided to check out the home page to see what to do. I guess the back to school season has slowed us all down. Hope to hear from the "group" soon. Robin in S.CA


09/16/98 15:32:43

Name:
Eva-Marie
   
Location:
Brooklyn
Age:
31
Reason for Hip Problems:
Cortisone induced AVN
Profession:
Analyst/Law Student
Comments:
When I was 17, I had a problem with my spleen and was given large doses of cortisone which reduced the blood flow to my hip. At 18, I had a tibia bone graft to the hip, and then at 26, the total hip replacement. I chose the replacement because a freak accident at my job made it almost impossible to walk. After the THR, I was able to walk and begin activity but I still experience alot of pain during season changes. On my good days I hike and backpack, climb, lift weights and cycle. On the bad days I am practically immobile, and I am considering the revision surgery. I stumbled upon the site on one of my bad days and it is quite comforting to know I am not alone. Thank you for your site and feel free to contact me if you have any questions.


09/16/98 07:33:38

Name:
Samba S
   
Location:
Abidjan, Cote d'Ivoire
Sex:
Male
Age:
46
Reason for Hip Problems:
Car accident
Profession:
Secretary
Comments:
I have problem in walking straight and would like an advice and if possible to visit you next year when I have my life.


09/15/98 00:59:34

Name:
Lydia W
   
Location:
St.Augustine, FL
Sex:
female
Age:
43
Reason for Hip Problems:
degenerative joint arthritis
Number of Hip Surgeries:
one so far, need the other one done sooner or later. I prefer later.
Profession:
Massage Therapist and Massage School owner and director
Comments:
Linda, as you have heard many times over, you are fantastic. This website just gets better all the time. I believe you are certainly doing the job that you were sent here to do. I thank you with all my heart as you were the one to give me the courage t have surgery. Many blessings to you and your family. Sincerely, Lydia


09/13/98 21:23:04

Name:
Margaret S
   
Location:
Waterbury, Connecticut
Sex:
Female
Age:
27
Reason for Hip Problems:
bi-lateral congenital hip dysplasia
Number of Hip Surgeries:
None yet - but strongly considering surgery
Profession:
Speech-Language Pathologist
Comments:
Hi, I am seriously considering bi-lateral total hip replacements. While I am not in excruciating pain, I do experience pain/stiffness daily and feel that I am significantly limited physically. Among my concerns is having this surgery done at my age. I r ally feel that I am too young to be so physically disabled when there is something out there that can possibly help. Please e-mail me with any advice. It would be great to hear from someone who is going through/or has already been through a similar situation. Thanks!


09/11/98 18:46:28

Name:
John S. B
   
Sex:
Male
Age:
39
Reason for Hip Problems:
AVN due to Cortisone
Number of Hip Surgeries:
5, 3THR
Profession:
Teacher/Coordinator
Comments:
Thank you for creating this website. It really was helpful reading your story. I felt like I was alone in the world but seeing that your experiences have been similar to mine, it has helped a great deal.

09/09/98 04:00:49

Name:
F. Rock
   
Location:
Pennsylvania
Sex:
Male
Age:
42
Reason for Hip Problems:
Bilateral AVN Prednisone
Profession:
Environmental Manager
Comments:
I have been visiting this site for quite a long time. February 1995 I felt pain in my right hip, by April I could barely walk and was getting epidurals for a sciatica. During the fall of '95 I was finally diagnosed with bi-lateral avn. March 1996 I had a core decompression and vascularized fibular graft on the left hip, probably the worse move I ever made. Nothing worse than cutting out good body parts chasing bad ones. December 1996 I had the right hip replaced. No problems since then. April 1998 I could no longer tolerate the pain and limitations of the left hip so I had it replaced. It came around a little slower than the right, I attributed this to having half the Fibula cut out. My golf game has improved significantly. I can get into a full s uat and stand up. I can bend over and grab the golf ball from the cup. I CAN TIE MY SHOES WITHOUT ANY PAIN!! This is great, I forgot what it was like not to have constant pain. I love it.


09/06/98 04:40:05

Name:
Darcy H
   
Location:
Moose Jaw, Sask.
Sex:
Female
Age:
25
Reason for Hip Problems:
Juvenile RA
Number of Hip Surgeries:
1Right, 1Left
Comments:
I developed Juvenile RA 6 years ago. On April 29th I had BOTH hips replaced. On July 6th I had my right knee replaced and on August 19th I had my left knee done!!! I am happy to say I'm now at home resting nicely -- PAIN FREE!!!


09/06/98 01:50:42

Name:
NICK
   
Location:
TEXAS
Sex:
MALE
Age:
71
Reason for Hip Problems:
AVS
Number of Hip Surgeries:
NONE YET
Profession:
RETIRED
Comments:
HELLO


09/05/98 22:09:01

Name:
Cheri S
   
Location:
Pinole, California
Sex:
Female
Age:
43 almost 44
Reason for Hip Problems:
Congenitally Dislocated Hip
Number of Hip Surgeries:
THR 1, Revision 2 having #3 in 11 days
Profession:
Medical Receptionist
Comments:
I enjoyed your story of your surgeries. I had my THR (Mittlemeyer) 9/29/83. Revision 5/1/95, Revision 10/24/97 and Revision to be 9/16/98. I also had many surgeries leading up to this that were as an infant and child. Is this where I am to post my story?


08/29/98 18:28:17

Name:
Robert L. H
   
Location:
Crestview, FL
Sex:
Male
Age:
58
Reason for Hip Problems:
Avascular Neucrosis
Number of Hip Surgeries:
Four
Profession:
Retired US Air Force
Comments:
I have had a bilateral core decompression and bone graft which did not turn out positive which was followed by a bilateral hip replacement. If anyone would care to talk with someone who has experienced this type of surgery would like to e-mail me, I shall endeavor to answer.

 
08/25/98 00:23:44

Name:
Steve
   
Location:
Massachusetts
Sex:
Male
Age:
37
Reason for Hip Problems:
Bicycle/car accident
Profession:
Engineer
Comments:
in 1996 I was hit head on by a truck doing 55 in a 30 mph and in the wrong lane. Had a THR done in 1997 that included most of the pelvis as well. Surgery lasted 10+ hours, but was very successful While I still have some pain, life is great! I am looking for people who ride a bicycle with a THR and have been doing so for a while. I am trying to determine what an "acceptable" level is as I was a very active racer. While I don't intend to get that serious, I would like to get fit enough to participate in the evening rides that regularly occur. I would appreciate any responses from those with experience. Thanks.

 
08/23/98 19:36:58

Name:
yusof m
   
Location:
malaysia
Sex:
male
Age:
40
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
first
Profession:
project mgr
Comments:
Very informative site on THR. I only new it after my surgery while resting at home and browse thro' the internet. Very helpful for group discussion both pre and post surgery problems thanks a lot


08/14/98 05:44:16

Name:
Maureen K
   
Location:
Rochester, NY
Sex:
female
Age:
28
Reason for Hip Problems:
Birth defect
Profession:
Rental agent
Comments:
Hello my name is Maureen , I'm a 28 year old female that was born with both hips out of socket . Unfortunately by the time they were discovered I was two years old . Due to the length in time the left hip socket rotted . From the time I was two I had b en put in traction for five weeks and then put into a frog leg spica cast for two years . The hips stayed in place until I was in Sixth grade , then they fell out of socket again . I had lost alot of schooling and had to have home tutoring . My last big surgery took place in 1983 were they made a homemade socket for me out of my own bone on the left hip. That surgery was eight hours long . I had a full body cast from the waist down . Presently I've developed Arthritis in the joints. I have alot of eroding of the bone going on and loss of joint space. At this time the doctors feel that I'm far too young to have them replaced yet. I hope that someday I will be pain free and able to live a normal life. To all those that are living with daily joint pain remember your not alone . Thanks


08/11/98 02:09:08

Name:
crystal g
   
Location:
new jersey
Sex:
female
Age:
28
Reason for Hip Problems:
deg. joint disease
Number of Hip Surgeries:
5 (1 replacement)
Profession:
realtor associate
Comments:
it was great to read all of this, thanks!

08/08/98 03:03:15

Name:
Julie M
   
Location:
NJ
Sex:
Female
Age:
57
Reason for Hip Problems:
AVN
Profession:
Account Executive
Comments:
Update: I had a total hip replacement 13 years ago and the socket wore out this year. It was replaced in Mid March with great results. I was back to work in ten weeks, and now, July, I can do everything. I don't limp, I go to the gym 3 times a week. I didn't expect the results to be as good as the original replacement -- for no particular reason, guess I thought 2nd time around could not possibly be as good, BUT I WAS WRONG! Sometimes these histories are so scary so I would like everyone to know about a wonderful success story.


08/04/98 22:47:59

Name:
Lisa A
   
Location:
Atlanta, GA
Sex:
Female
Age:
29
Reason for Hip Problems:
AVN/Prednisone
Number of Hip Surgeries:
1 Core Decomp/Rt THR/ 2 Lt THR
Profession:
RN
Comments:
I was diagnosed with Leukemia at age 14. Received chemo over 2 1/2 years, incl. high doses of Prednisone. Went into remission quickly, but developed hip pain 2 yrs into chemo. Diagnosed with bilat. AVN. Had core decompression on the Lt hip, Rt hip was too far along. Three yrs later, at age 19, had Rt THR, and a year later on the Lt. It was wonderful to be pain free. Had many years of NSAIDS with no relief. Feb of '97, after 7 years, needed revision of the cup on the Lt (newer side), due to osteolysi . Back on Naprelan, probably for a lifetime to control the osteolysis. It hasn't been easy, but I can now live my life virtually pain free (as long as I don't overdue it).


08/04/98 01:18:07

Name:
Todd K. G
  Location:
Kansas City, Missouri -- the Heartland!
Sex:
Male
Age:
32
Reason for Hip Problems:
AVN
Profession:
Consultant
Comments:
My problems began in November 1996. I was having pain in my left shoulder during and after weight-training 2 to 4 times a week. Initially, doctors thought it was a torn rotator cuff. Later, an orthopedic surgeon confirmed a radiologist report that it was a ascular osteonecrosis. I had had a life-threatening bout with pneumocystis carinii pneumonia in 1995, and had been dosed with large amounts of corticosteroids like prednisone. The ortho basically said I had no choice but joint replacement for both hips an both shoulders. He started with my left hip, it being the worse weight-bearing joint. Next came my left shoulder, then my right hip. My recoveries have been pretty remarkable--mostly because I think I've been able to fight serious disease with excellent doctors, profound spirituality, and the support and love of both my family of origin and my family of choice. Since my surgeries and therapies, I've regained almost all of the previous mobility and a great deal of the strength. Early next year, I'll undergo the fourth surgery to replace the joint in my right shoulder, and I don't expect it to be any more challenging. My partner, David, my parents, my work family, and my friends helped me to make this--and having this support group was a huge blessing. The o ly advice I would give to someone considering THR is to be aware of each and every option first, and after surgery to be VERY aggressive with physical therapy. You can do it!


08/03/98 19:24:52

Name:
Max K
   
Location:
Bayside, NY
Age:
66
Reason for Hip Problems:
arthritis
Number of Hip Surgeries:
three
Profession:
tire sales
Comments:
Had a revision on May 26th and I am still on a walker and still have pain. Going back to the surgeon on August 17th, hope to go on canes at that time. This surgery was very different my other two surgeries I was back at work within 6 weeks. The only the apy I can do is to go into the pool which really helps. Hope the pain goes away soon.


07/30/98 20:06:21

Name:
Robert N
   
Location:
Virginia
Age:
63
Reason for Hip Problems:
Predisone
Profession:
Retired
Comments:
They think my being on predisone for my aplastic anemia is what caused this. I am in stage I and am trying to get by with a cane and some pain pills; but the pain is definitely getting worse.


07/30/98 06:42:49

Name:
Darleen B
   
Location:
N.C.
Sex:
female
Age:
48
Reason for Hip Problems:
AVN/Arthritis/birth defect
Number of Hip Surgeries:
1 core decompression (r) scheduled for THR 8-24
Profession:
LPN
Comments:
Decompression did not work for me Oct. 97. continued to stay in pain, unable to walk without crutches. Left hip is now also in a bad way, so my Dr. feels it has been enough time to see if the right hip would be better. Am to have THR next mth, then in 6 mo ., if all goes well with this one I will have the left hip done. I love this site. Thank you for starting it. Anyone welcome to email me. I really miss my work so please pray I will get better soon.
 

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