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12/17/98 01:19:06

Name:
Mari
   
Location:
Massachusetts
Sex:
female
Age:
29
Reason for Hip Problems:
osteoporotic fracture of femoral neck
Number of Hip Surgeries:
1, hip screws
Profession:
Social Worker
Comments:
I began having hip pain (have had bone aches for three years) in April and went to the ER. They said it was nothing but a pulled muscle if it didn't get better in 8wks see an ortho dr. In June, I saw an orthopaedist who said bone tumor and did some tests. HE then said he didn't have a clue as to what to do for an operation and sent me to an oncologist in Boston. Late July went to the oncologist who looked at the first ER xray and CT and said "get in the wheelchair, you have had a femoral neck fracture for four months" More tests told them they needed to operate ASAP. Surgery done week later. Two screws were implanted and I was on my way, or so I thought. I was then diagnosed with osteopenia as my fracture happened without a fall or trama of any kind. Bone density revealed that I needed to go on Fosamax. It is now Mid December and I am still between partial and full weight bearing. I have alot of pain and I will be seeing an osteoporosis specialist soon.

 



12/03/98 01:14:08

Name:
elaine n
   
Location:
blairsville ga
Sex:
female
Age:
54
Reason for Hip Problems:
fall
Profession:
banker
Comments:
I sure wish I had found this site before my surgeries!


11/20/98 10:24:39

Name:
Ellen B
   
Location:
Vancouver, B.C. Canada
Sex:
Female
Age:
39
Reason for Hip Problems:
slipped epithesis
Profession:
University Professor
Comments:
Hi. Great site. I've been looking for something like this since I got out of the hospital 7 weeks ago.... I have a few questions-- is it possible to search your archives? Can I post to the newsletter and ask for replies to me (I am in e-mail overload and am nervous about subscribing to any lists as I can't really keep up with my work e-mail. Tomorrow is my 3 month anniversary of my first total hip replacement, which was my forth hip surgery. My previous surgeries were 5 pins to correct a slipped epithisis at 11, an attempt to have my pins removed prior to an osteotomy at 33 (only 3 of the 5 p ns came out), a femoral osteotomy at 34 (in an attempt to delay my total hip), and a total hip at 38. My most recent hip surgery, 3 months ago included removal of old hardware (2 pins, a plate and 4 screws), an osteotomy (the previous one left my leg poorly aligned in terms of getting a prosthetic in), turning my leg (as part of the osteotomy) so that my oot pointed straight ahead (the previous osteotomy had turned my leg out at an extreme angle, which had been causing knee and ankle trouble), and a total uncemented hip. After a 6 day hospital stay I was home. I was told not to put weight on my leg until Nov. 1, which was about 10 weeks post-op. I haven't yet been allowed to do any rehab, though I am hopeful that at my next check-up I'll get an ok to do physiotherapy and bit of excercise. I've been weightbearing for 3 weeks, (still on crutches), and I am supposed to be full weight bearing in another 10 days. Tomorrow I get to sit on regular chairs and toilets and bend over. Generally all has been going well.


11/17/98 00:03:10

Name:
joanna q
   
Location:
new zealand
Sex:
female
Age:
26
Reason for Hip Problems:
congenital
Profession:
student and mother of three
Comments:
my name is joanna I am 26 years old. I have a sister who is nine years older than I and who also has a cogenital hip dysplaysia. Hers was diagnosed when she was first born and subsequently she spent quite some time as a six week old baby receiving s rgery for her condition, frog plaster ...you know the story however bear in mind that this story was 35 years ago and dad had to buld a little trolly for her to lie on her tummy and push her self around on. Nine years later I was born and after rotating m hips as a newborn the family doctor concluded that I was fine! so on I went, growing up with an unusual way of walking ( which was put down to me copying my older sisters gait). Mum , thinking that I was normal in the hip department enrolled me in athle ics and ballet and so on. This proved very difficult and hard on the self esteem, I became highly skilled at giving creative reasons for my inability to ever place higher than last in running races, and some ballet positions were almost impossible. Howev r it was not until after the birth of my son when I was seventeen that a plunket nurse promted me to go across the road while she minded the baby and get the gp to check me out. Sure as eggs what do you know he rotated my hip and click ,click , click . Xr ys revealed hip dysplaysia in my left hip and a very slightly deformed right hip,and severe scoliosis as a result. 17 years later and I could finally understand why walking , running and other forms of physical exercise were damn difficult. Mum and Dad elt terrible for not getting me seen to, and now finding out that I was compensating for a physical disability all this time. A second pregnancy delayed surgery but in 1992 a surgeon at Auckland hospital performed a chiari osteotomy to create a shelf for my joint to sit in . This involved the pelvis being cut in half and the lower part moved slightly and joined with two fairly impressive (on an xray ) sized screws. Recovery was slow and impaired by my innability to take doctors orders and rest, resulting n the bones not meshing and the top half of my pelvis sliping foreward nearly piercing the skin. my muscles were joined on this ridge and ended up tearing as this was protruding so much- in my dodtors words when he opened me up it was like the rock of gi raltor. For those who were wondering this was causing periods of sharp pain mostly when getting in and out of a car. I can't say that the chiari has really helped me as i dont know to what extent my hip would have deteriorated without it? the next step i ofcourse a total replacement but because i am so young my surgeon would like me to delay as long as possible in order to take advantage of latest tecnology. When I came accross your web site ,( my dad had printed off the stories for me) I cried , tears of finding other people on the planet going through similar experiences, its difficult to realy describe other than expressing gratitude to you for providing your stories and this web page . In order to prepare for future surgery I will need as much help as possible. Currently though i am experiences a dilema in that I am cycling alot and my level of fitness is increasing which is wonderful for my motivation, however due to my legs becoming more muscly they are alot harder to walk(heavier) with and I have been falling over a fair bit lately (in public, which hurts my ego) and unable to on occasions lift my legs over the bike seat resulting in droping the bike(you might have to be there to understand what I mean) Any similar experiences or feedback on solut ons would be appreciated. love jo


11/14/98 01:18:46

Name:
Pete W
   
Location:
Wales UK
Sex:
male
Age:
31
Reason for Hip Problems:
dislocation
Profession:
shopkeeper
Comments:
Great Site Well Done I had my hip replacement ( thrust Plate ) done 4 weeks ago end October 1998 and so far so good still got post op pain but im told that this will fade. I am hoping to get back to normal within 6 months but who knows? any Tips ??


11/11/98 03:24:20

Name:
Maracia
   
Location:
MINNESOTA
Sex:
Female
Age:
72
Reason for Hip Problems:
Arthritis
Number of Hip Surgeries:
One
Profession:
Retired
Comments:
After a fantastic recovery from THR 9/25/98, I got the “all clear” from the doctor on 11/6, and threw my hip out 11/7. Trip to emergency room turned into an overnight stay. Had spinal block to put hip back in. Dr. said if it happens again he opens me up f r a ”hip revision” Be careful!


11/10/98 07:28:11

Name:
Greg M
   
Location:
In
Sex:
Catholic unmarried virgin
Age:
42
Reason for Hip Problems:
organ xplants "roids
Number of Hip Surgeries:
3 sofar
Profession:
Was landlord/ factory
Comments:
Gov health care is designed to force its victims to vote democrat. I take a lot of drugs, er meds & had a few holes drilled in head. But I ain't gave up. Sign your organ donor card and tell your family.... Kidney/two livers 88-89


11/02/98 14:21:55

Name:
Terri E
   
Location:
Tipp City, Ohio
Sex:
Female
Age:
39
Reason for Hip Problems:
congenital
Number of Hip Surgeries:
one
Profession:
L.P.N.
Comments:
I am excited to find this support group. I am learning alot. It helps to know that I,m not the only one going through this. I also wish I would have known about this prior to my surgery 10/7/98. I am learning alot about the computer/internet too. I hope am doing this right...Terri


11/02/98 03:07:39

Name:
Deb M
   
Location:
Newaygo, MI
Sex:
female
Age:
47
Reason for Hip Problems:
avn unknown cause/probable trauma
Number of Hip Surgeries:
one
Profession:
medical assistant
Comments:
Sure wish I'd found this site prior to surgery!!!! I think it is wonderful and will pass it on. Deb


11/02/98 01:20:10

Name:
Kenneth O
   
Location:
Hillsdale, Mich,
Sex:
Male47
Age:
47
Reason for Hip Problems:
Auto Accident-Nov. 1996
Number of Hip Surgeries:
four
Profession:
Semi-driver
Comments:
My accident was a head on crash caused by a young man driving a van that crossed the center line on a hill that hit my pick-up. I have had a number of surgeries other than my hip and several bouts of infection. I had quit a bit of metal in me. Some has been taken out because of infection. I have more to be removed. Right now it has been a long hall waiting and at this time I have no hip the ball has been cut off and there was a rod in my femur, plates and screws have been removed. I have had several complications along the way. 2 years ago today Nov. 1, 1996 was my accident and all I want to do is get back to work and not have to worry about my future. We just keep waiting to here when the next surgery will be. My infection level has been to high to have a hip replacement I assume the next step will be to try to dig the rest of the metal out of me and start all over again. Has anyone else run into this many complications with an accident situation on the hip?

 
10/27/98 06:29:18

Name:
Alissa L
   
Location:
Phoenix, AZ
Sex:
Female
Age:
28
Reason for Hip Problems:
Auto Accident
Number of Hip Surgeries:
1 Left THR, 1 Revision and 2 Recent Dislocations
Profession:
Teacher
Comments:
It's been awhile since I've written. Mainly, now I am just scared. It's been 3 years since my major revision and my hip has dislocated twice in the last six months each time sending me into the emergency room to be knock out to have it shoved back into place. The scary thing is it dislocates while walking with my left foot slightly pivoting outwards. I'm nervous because their is discussion of having to have more revisions done and I am tired of surgery and problems. For the most part, I am glad that I c n walk and do things just frustrated when theses set backs occur.


10/26/98 20:20:15

Name:
Darleen B
   
Location:
North Carolina
Sex:
Female
Age:
49
Reason for Hip Problems:
AVN/Arthritis/birth defect
Number of Hip Surgeries:
2--1-core,1-(R)THR--left side sched. for April 99
Profession:
LPN
Comments:
This is an update from 7-30-98-- I am 2 mos. post-op from my (R) THR. BOY!! it sure feels great not to have the hip pain that I had before the surg. I am doing really well-walking without problems,still have to use 2 crutches though since other side is bad (will have it replaced sometime in April of 99--CAN'T WAIT) I am going out in a car, driving a little again, and shopping for Christmas. The THR was nothing compared to what I feared-it was so much easier-the pain was well controlled after the surg. and by the 3rd. day, I was on meds by mouth. Now after 2 mos. I sometimes take something to help at the end of the day , especially when I do lot more than I know I should-like sitting at the PC all day- This is the most special support group that could ever be started. The emails, support,and friendships that you get are always coming to you at the right time--and Linda is the best group leader you could have--I love ya , Linda!! I hope to be of help to anyone who needs me--just email me and I will try to help in any way I can.


10/23/98 19:47:27

Name:
Julie
   
Location:
California
Sex:
female
Age:
40
Reason for Hip Problems:
congenital hip dysplasia
Number of Hip Surgeries:
1, left THR
Profession:
mother of 3, substitute preschool teacher, part-time data entry
Comments:
I had a THR 10/5/98 due to congenital hip dysplasia. I've always had minor problems with my legs and lower back, such as never being able to sit Indian style, limited flexibility in both legs, lower back aches that never went away no matter how good of sh pe I was in, hearing popping sounds in my lower back (probably my hip) while hiking and backpacking, slight pulling sensation in the groin no matter how much stretching I did prior to jogging, slower jogging times, knee pain, upper thigh pain, and being p geon-toed on the left side. During my last pregnancy in 1994, I was unable to lift my left leg in and out of the car. I mentioned this to my OB-GYN, but assumed it was due to the baby sitting on the nerve. My hip bothered me after giving birth, but I thou ht it was the nerve and/or muscle/tendon strain. I finally went to my primary care physician about it, but he thought it could be a pinched nerve. X-rays showed nothing in the back. I went to PT a few months later with no relief. I finally went back with he same complaints a year later and got a hip x-ray. I was seen by an orthro doctor within one week with the diagnosis, congenital hip dysplasia. I saw his colleague a few weeks later who was ready to do surgery. The first ortho doctor wanted me to wait f ve years before having surgery. I went to a third doctor for an opinion, and decided surgery now was the answer not surgery in five years. At this point there was no cartilage between the head of the femur and what was my hip socket. Anyway, surgery went ell. I did have a reaction to my blood transfusion which I had never heard of: uncontrollable muscle spasms from head to toe. I never want to experience THAT again. My recovery is going okay. It will take me longer to get any flexibility in my leg and hip because I never really had any to start with. My physical therapist keeps stressing ice on the joint before exericsing and I'm starting to remember to do that. It does help. Anyway, I'm looking forward to being independent again and hopefully not having t t have the right hip replaced. Time will tell about the other one. This web site has been very helpful for me. It is very reassuring to know other people have gone through this and are pain-free and have a normal life!


10/23/98 18:52:20

Name:
John H

 
Location:
Surrey
Sex:
Male
Age:
23
Reason for Hip Problems:
Evascular Nucrosis
Profession:
Engineer
Comments:
It started when i 15. My Family and i went to a theame park in cornwall, england then dicovered a rope swing, so my step father and myself both tryed to swing on it. As we both went out i slid down the rope and fell off. I dont remember hitting the fl or just sliding down a slope. I had a pin and plate to rejoin the hip and connect the blood supply. The blood supply did not reconnect therefore i developed evascular nucrosis. I had my first hip replacement when i was 18. Ever since i am not allowed to run long distances or do any sports at all. I have had pain lately but my doc says it's ok. I am glad i am not the only one who has not gone through this pain so young. I am not looking forward to the next three replacements that i have to go through. Thanks


10/23/98 00:56:17

Name:
Penny
   
Location:
Chicago
Sex:
Female
Age:
51
Reason for Hip Problems:
Osteoarthritis
Number of Hip Surgeries:
one
Profession:
Executive Secretary
Comments:
This is an update from my entry of 10/13/98. I began outpatient therapy today and was graduated to a cane. I was told that I am in great shape and very strong for having had surgery on 9/15/98 (uncemented), which made me very happy. My operated on leg s a centimeter and a half longer than it should be and until that changes (and I no longer limp), I will be on a cane. I have been diligent about my exercises; however, I still need to work on the back of my thigh and the muscle near my groin area. I can walk without the cane but I limp. The only pain I feel is from exercising new muscles and I guess that it's the physical therapist's job to make you hurt to get you better! We are flying from Chicago to Phoenix at the end of the month so I am going to ind out what it's like to fly for four hours. I am still extremely stiff when sitting for any length of time, despite all my exercising! Fortunately, my husband was able to get bulkhead seating with me in the aisle seat. I'll keep you posted!


10/21/98 23:13:08

Name:
Jim S
   
Location:
San Francisco
Sex:
Male
Age:
47
Reason for Hip Problems:
Legg-Calve-Perthes Disease
Profession:
Software Engineer
Comments:
For still unknown causes, I contracted Legg-Calve_Perthes disease at about age 9. Right hip first, then, a year later, my left hip (I'm one of the lucky 15% or so who get it in both hips). All through my 20's and 30's I wanted to get the hip replacement , but my doctors advised against it. Last year, at age 46, technology was good enough (and I was old enough!) so that hip replacement made sense. They replaced my right hip a year ago, and it went very well. Recovery was quick (I was back at work full ime in 4 weeks) and I was able to be very active in no time. But my left hip continued to give me problems, so it was time to replace it. Just 3 weeks ago, we did the surgery. Recovery has again gone well, although my stamina is not quite as good as it was last year. Looks like I'll be going back to work full time at 5 weeks this year. The doctor says indications are very good that these replacements may last 30 or 35 years, if I'm lucky.


10/17/98 17:35:10

Name:
Ernest G
   
Age:
43
Reason for Hip Problems:
AVN due to steroids
Number of Hip Surgeries:
4, 2 core D's and 2 total
Profession:
machinist / engineer
Comments:
 


10/14/98 18:37:10

Name:
Lynne H.
   
Location:
Victoria, BC, Canada
Age:
50
Reason for Hip Problems:
osteo-arthritis
Profession:
Secretary
Comments:
Your site was most helpful and informative to me before and after THR surgery. Thank you for providing such a place on the NET. My surgeries were 6 mos. apart. Any help/info I can provide, please e-mail me.


10/13/98 21:00:06

Name:
Penny
   
Location:
Chicago, IL
Sex:
Female
Age:
51
Reason for Hip Problems:
Osteoarthritis
Profession:
Executive Secretary
Comments:
I had my first THR (uncemented) on September 15th. It is almost one month and next week I will see my doctor for my post op appointment. I will say I have never experienced more pain ever than what I had with this surgery; however, most of that subsided after the first two weeks. I am still on two crutches, a physical therapist comes 3 x week, and tells me I'm progressing well. My operated on leg is still longer than my right but seems to be gradually getting shorter again. I'm told it will be back to normal within three months. With respect to weight-bearing, contrary to other comments I have read, my doctor told me I could put as much weight on my leg as I could bear. I went outside of our building two days ago for the first time since coming home rom the hospital (Sept 19) and walked with my crutches for several blocks. Just this past week, it became more comfortable for me to NOT use a pillow under my knee when sleeping at night. It has been uncomfortable for me to straighten out my leg without feeling muscles pulling. I still have not slept through the entire night and look forward to that happening. My best advice to anyone undergoing this surgery is to be very diligent with your exercises, doing them every day and practice walking with your crutches. I have only lived in Chicago for just short of two years after having lived most of my life in Southern California. There aren't a lot of places in downtown Chicago where you can walk without a lot of traffic, people, etc. However, I also use the hallway in our building and walk it back and forth several times, exaggerating my walk to work the muscles in my leg. My husband has also been very helpful in assisting me with my exercises on the days when the PT isn't here. I am pleased to have he rd about Totally Hip. I came across it when reading a comment elsewhere by Greg@parklane.mv where he recommended this site. I've found that there are people who have had it much worse than me and some who have had it easier. I like the fact that there s a place to go where someone else understand EXACTLY what you're going through. Thank you.


10/12/98 01:54:27

Name:
Brenda H
   
Location:
Raleigh, NC
Sex:
Female
Age:
42
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
pending
Profession:
Psych. Nurse
Comments:
This site has been a great support for me since my hip collapsed 4 days ago and was diagnosed with AVN due to steroid use. I am scared but this has been a big, big help! Thanks for having the motivation to create such a helpful site for people like us.


10/08/98 22:25:43

Name:
Jim O
   
Location:
Middletown NY
Age:
53
Reason for Hip Problems:
OA
Number of Hip Surgeries:
One
Profession:
Government
Comments:
Had my surgery 10/1 and back from the hospital for two days now. Wonderful info you have here. Just called the doctor because of the affected leg starting to swell (like a balloon). Ah, he says, "That's normal". Well, let me just look around and see what I can find.


10/08/98 12:22:28

Name:
Helen S
   
Location:
London, England
Sex:
Female
Age:
30
Reason for Hip Problems:
Bilateral Congenital Dislocation of both Hips
Number of Hip Surgeries:
More than 20......
Profession:
Librarian
Comments:
I have secondary Osteoarthritis which is the reason I will nedd both hips replaced. This is as a result of dislocated hips at birth for which I had repeated but largely unsucessful treatment as a child. I am now relatively active - I work full time, live alone and swim regularly. I walk with the aid of a stick and drive most places if at all possible. I now drive an automatic since trying to use a manual vehicle became too painful. I have a reacher, which I find useful for picking things up from the floor as bending and reaching my feet is now almost impossible. As I work for a Health Authority I have access to medical journals and try to keep an eye out for useful information. I try to mail the hippies of anything especially useful. I am currently being treated by the Royal National Orthopaedic in London and expect to have at least one of my hips replaced within a few years. Doctors are not anxious to do this as I am relatively young for the is surgery. I am always interested to hear from other like myself in England.


10/07/98 10:37:42

Name:
roy w
   
Location:
statesboro, georgia
Sex:
male
Age:
54
Reason for Hip Problems:
arthritis
Number of Hip Surgeries:
one
Profession:
retired truck driver
Comments:
enjoyed your web site helpful


10/05/98 21:56:15

Name:
Garret C
   
Location:
Des Allemands, Louisiana
Sex:
male
Age:
31
Reason for Hip Problems:
AVN military accident
Profession:
retired military
Comments:
I was hurt in a military training exercise that caused the blood vessles that feed the hip to break therefor causing the AVN. I tried all the core decompresions, bone graphs, even tried to use my own bones and vessles to make me better, and nothing worked for me. Well the next step was to get a THP. I did and I'm still having problems. Now my knees are having the same problems my hips had. I don't know if they can replace knees after already having my hips done, but I think the next step is going to be the hardest. I've been told that a wheelchair is the next thing in line. If anyone can give me information on my next step please write me. I'm always home and checking my mail for any encouraging words. Thanks .


10/01/98 00:44:13

Name:
Kathy P
   
Location:
Birmingham
Sex:
female
Age:
38
Reason for Hip Problems:
Osteoarthritis
Number of Hip Surgeries:
2-bilateral
Profession:
mother, home bus. and homemaker
Comments:
Thank goodness there's a place that I can go to without overwhelming my family again. They went through enough last yr. with both of my surgeries. I hope that I can contribute, as this was a very important event in my life. And yes..."He does help those that help themselves." Kathy
 

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