Make your own free website on Tripod.com


02/13/99 01:38:15

Name:
Hedy C
   
Location:
Southern California
Sex:
Female
Age:
56
Reason for Hip Problems:
AVN
Comments:




02/13/99 00:19:57

Name:
Kay B
   
Location:
Grass Valley,Ca
Sex:
Female
Age:
65
Reason for Hip Problems:
dislocation
Number of Hip Surgeries:
one
Profession:
retired teacher
Comments:
I have had 6 dislocations since my initial surgery July 22,1997 Would like to hear from people who have had similar problems




02/12/99 03:10:33

Name:
Cindy B
   
Location:
Jacksonville, FL
Sex:
Female
Age:
37
Reason for Hip Problems:
Fiberous Dysplasia
Number of Hip Surgeries:
3 THR-15 sur. in all
Profession:
Mother of 3 boys!
Comments:
My story is long and complicated. It's nice to find a web-site like yours. Thanks!




02/11/99 19:35:58

Name:
Frank O
   
Location:
PA.
Sex:
Male
Age:
52
Reason for Hip Problems:
Rheumatoid Arthritis
Profession:
Programming Manager
Comments:
I had my left hip replaced in March 1993 and my left hip revised in May 1993. (The why is a long story.) My right hip was replaced in September 1997. Both hips are doing fine, my left is my "bad" leg, due to the shattered femur I experienced after the irst hip replacement. I'm still very active (as active as someone with severe RA can be). I'd be happy to share information or advise to anyone. Thanks.




02/11/99 04:37:12

Name:
Marji
   
Location:
Maryland
Sex:
Female
Age:
almost 41
Reason for Hip Problems:
Bilateral Legg Calves Perthies Disease
Number of Hip Surgeries:
1 total hip, 1 Greater Trochanter Transfer Rt.; Numerous bilateral knee operations
Profession:
Speech Language Pathologist
Comments:
I was diagnosed with bilateral Legg Calves Perthies at 3 years and wore "pogo stick"-like braces for 8 years. Although I was told that I didn't get a good cure in my right hip, once out of the braces I did everything-bike riding, dancing, water skiing I w s so blessed! Then at 21 years I was a passenger in a terrible car accident that re-activated the disease process. I was unwilling to undergo a THR at such a young age, but finally had a Greater Trochanter Transfer in hopes of ending the constant pain. Th nk God, it worked and I went on to get married and have 4 wonderful sons! Unfortunately, the day after my 40th birthday a truck pushed my car into a ditch and got the disease process going again. After trying everything, I had a THR on 9-28-98. It was muc more extensive than even my doctor anticipated. My acetabilum was extremely shallow, there was essentially no neck at the head of the femur, and the ball was 1.5cm uncovered and very small & flat. The surgery took 5 hours, I needed 5 pints of blood, and as much more painful than I thought it would be. But the worst part is that my THR leg is 1 1/2 " longer and all of the muscles from my gluts & hip flexors to my feet are in what seems like a constant state of contraction. After 4 1/2 months of intensive hysical therapy with the most wonderful therapists anyone could ask for, I still cannot stand upright due to all the tightness. We have even been trying muscle relaxers for the past 3 months. I'm walking with a cane, but if I walk very long my back and al the muscles from my groin to my foot bunch up. I'm scheduled for a revision 3-22-99 because it seems like the only way to get my life back (except for a miracle, and I have been asking the Lord for one). Has anyone ever heard of a THR being so tight? Go ly day, I do wish I would have known about your website before my surgery! What a blessing to know I'm not in this alone!




02/11/99 03:53:07

Name:
MARK W
  Location:
LEAWOOD KS
Sex:
MALE
Age:
47
Reason for Hip Problems:
OLD TRAUMA
Profession:
SALES
Comments:




02/10/99 20:13:00

Name:
Stephan
   
Location:
Toledo, Ohio
Sex:
Male
Age:
45
Reason for Hip Problems:
Perthes
Number of Hip Surgeries:
None
Profession:
Inspector
Comments:
I went to see my Dr. about a THR. It got to where I was barely able to walk 9 holes of golf. X-rays taken verified the reasons for the pain. It was bone on bone. In a last ditch effort the Dr. put me on Cosamin DS and Daypro. So far it is helping. I have een using the stairmaster every night at the gym with little pain the next day. Some days I don't even use the Daypro.




02/10/99 18:59:47

Name:
Karen M
   
Location:
Western PA
Sex:
Female
Age:
38
Reason for Hip Problems:
Degenerative subchondral cysts
Number of Hip Surgeries:
none
Profession:
Retail Merchandiser
Comments:
At the present time I'm being treated with Hidradenitis Suppurativi which is my secondary problem. These are infectious cysts located in the groin area which are parallel to the cysts which I have developed in my hips. Dr.'s state due to on going staph in ections in the groin area they can not ever perform THR surgery. The cysts located in the hips are refered to as subchondral cysts. Please if anyone out there has any information that could help my situation please E-Mail me. My Dr.'s state I'm a unique c se. Let's prove them wrong. There main focus of treatment at the time is to try to control and manage the Hidradenitis Suppurativi. Dr.'s have determined that any attempt to preform surgery on the hip with this secondary condition would be at best a major disaster at best if not life threating. GOD BLESS US HIPPIES ........ HELP !!!!!!!!!!!!




02/09/99 18:57:09

Name:
jim b
   
Location:
glencoe il
Sex:
male
Age:
66
Reason for Hip Problems:
arthritis
Profession:
attorney
Comments:
it will be 7 weeks on friday. I can walk without a cane but still have some pain-more a muscle pain than the pre operation pain.I wonder when all pain will go away.




02/09/99 16:27:55

Name:
Benjamin S
   
Sex:
22
Age:
Male
Reason for Hip Problems:
AVN
Profession:
none
Comments:
After submitting my first "guestbook" entry on this page, and reading other people's entries I feel compelled to tell a bit more of my story. I have always seemed to be a problem child for any doctor I have seen, mostly due to my hips. I used to race BM bicycles when I was young (around 11 or so), which spurred on several years of hip problems. I was diagnosed with a form a rheumatoid arthritis a few years ago, but I think the doctors were "searching" for a diagnosis. Eventually I was correctly diagno ed with AVN in both hips! Life as a college student (at a Big Ten school) with AVN has been, to say the least, a challenge. After many months of my life being led by Tylenol #4, I have decided to take the plunge and have two THRs, the first in March. The second one hopefully as soon as possible. The pain from surgery recovery cannot possibly be any worse than my everyday life now, so BRING IT ON!! I look forward to living an active life of a 22 year old! Feel free to contact me, if you would like!




02/09/99 16:04:32

Name:
Benjamin S
   
Location:
East Lansing/ Battle Creek Michigan
Sex:
Male
Age:
22
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
0, but one coming in March of 1999, and the other soon following.
Profession:
None, yet. Just graduated from Michigan State University, and hope to join the Peace Corps ASAP.
Comments:
This page is really informative. Most of the other pages I have read regarding THR strictly come from the viewpoint of the medical profession. I can't wait to get these surgeries done so I can go on with my life!




02/08/99 19:19:43

Name:
Amy L
 
  Profession:
communications for an orthopaedic group in Cincinnati
Comments:
Enjoyed the site! We are always looking for better ways to communicate with our patients both about their treatment and the advances developed ath the Cincinnati Sports medicine Research and Education Foundation.




02/08/99 19:07:11

Name:
Butch R
   
Location:
Augusta, Georgia
Sex:
Male
Age:
49
Reason for Hip Problems:
Avascular Necrosis
Number of Hip Surgeries:
2--on Right Hip
Profession:
Papermaker
Comments:
Thanks so much for this space--I had my first surgery at 31 and second at 43--I broke my femur one inch from where it was cut off six months after the first surgery(1981)and had traction and casts for several months. Everything turned out OK and have been fine since.Plastic socket broke when I was 43(1993),so I had second surgery to replace same. Everything is fine since.---Thanks for listening--This is a great website--Butch




02/08/99 17:28:23

Name:
Gabriel S
   
Location:
New York city
Sex:
Male
Age:
39
Reason for Hip Problems:
Born w/forceps - infection
Number of Hip Surgeries:
4 times since 1974
Profession:
Hotel Management
Comments:
I was born with forceps in 1959. I had several surgeries in my left leg, as well as, several surgeries in my hip due to malpractice by my first surgeon in Argentina. Then, I found a specialist in Hip Replacements, who replaced the hip the first time for m at age 16. It was kind of an experiment, because it was never done in my country before, to people that young at age. The first replacement lasted for over 18 years, no pain, no problems, no medication of any kind. I was the happiest man on earth ever. A ter moving to the States in 1987, I was still OK for couple of years. Around the beginning of 1991 I started to feel uncomfortable and in pain again. In 1992, I had my first revision, which lasted OK for about 2 years. This was also done in Argentina by my original Hip replacement surgeon. THAT LASTED oK FOR A WHILE, BUT ON AND OFF I HAD PAIN AND NEEDED MEDICATION. Last year I decided to go for another revision, but this time in the USA. I had surgery at the Hospital for Special Surgery in NYC. It has been K, so far, but I have muscle pain very often and have to take anti-inflamatory medication now almost on a daily basis. I wonder if anyone knows of any solution to this problem. I may join your chat groups one of these nights.




02/08/99 01:28:29

Name:
Carolyn G
   
Location:
Winsted, CT
Sex:
female
Age:
51
Reason for Hip Problems:
congenital
Number of Hip Surgeries:
one, left hip
Profession:
teacher
Comments:
I was born with congenital hip problems. The sockets that did form were very shallow. I was unaware of my problem, and very active until age 40. I began having trouble walking any distance, and experienced a a very strong burning in my hip. Little did I k ow, that my orthopaedic doctor would tell me I needed both hips replaced. The hips were bad, and the arthritus had really set in. Unfortunately, he said I was too young, because the lifespan of the prothesis was not proven to be long enough. He felt I wo ld be looking at a second operation in my lifetime. After six years of this I changed doctors. In two years, after the pain got too hard to deal with, I convinced my new doctor that it was time! I felt I wanted to enjoy life now, and not wait until I was 0. I had THR on June 27, 1996, and it was the best thing I could have done. I received an uncemented hip, which didn't allow me to put any weight on my leg for six weeks. That was hard, but now I am pain free. My other hip has calmed down, because now the stress I was putting on it, due to favoring my left leg was gone. My limp and my pain are a thing of the past. Hopefully I won't be looking at replacing the right one for some time. It is great to be Motrin free. I would recommend this to anyone needing T R. It gave me my life back! My doctor is Cortland Lewis at the UConn Medical Center in Connecticut.




02/07/99 21:35:32

Name:
Donald M
   
Location:
Memphis, TN
Sex:
Male
Age:
41
Reason for Hip Problems:
AVN/Hip
Profession:
General Manager
Comments:
I have had one core decompression, and one this week. Not sure if it is going to work. I really miss doing what I want to.




02/07/99 16:20:50

Name:
Leah M. P
   
Location:
Birmingham, AL
Sex:
female
Age:
22
Reason for Hip Problems:
AVN
Comments:
Surgery Dates corrected; injury and first surgeries 1990, grafting at Duke 1992 and THR in 1996.




02/07/99 16:08:43

Name:
Leah M. P
   
Location:
Birmingham, AL
Sex:
female
Age:
22
Reason for Hip Problems:
AVN; Minibike Acc.
Number of Hip Surgeries:
7 ('92-'96)
Profession:
Leasing Consultant
Comments:
I was involved in a minibike accident in 1996 at 14yo. I suffered multiple injuries with the most severe being a right femoral neck facture. I underwent surgical pinning immediately but suffered non-union with subsequent further surgeries (x3) in the f rst 3 months to try to stablize. Avascular necrosis began within the first few months following my initial injury. I underwent bone grafting using my iliac crest as the donor site. All these measures failed and the AVN worsened as did the pain. I suffered a severe limp and spent most f my high school days on crutches. I also was absent from school due to illness for a majority of my high school years. This was extremely difficult both academically and personally. In a last resort to save my joint at the age of 16, I underwent a microvascular-fibular graft at Duke University 1992 by Dr. Jim Urbanek. My AVN was extremely severe with significant deterioation of femoral head present. I spent the next 6 months on cru ches to allow healing of graft. The graft lasted 3 years with the return of severe pain. I underwent a right total hip replacement on February 6, 1996 at age of 19 by Dr. Danny Micheal at St. Vincent's Hospital, Birmingham, AL. I have done well for most of the past 3 years with only occasional discomfort, directly related to activity, and no further limp. I have also married and had a baby by C-section in Fall of '97. I did not have any problems with my hip during pregnancy. I have recently experienced some increasing discomfort and am due for my annual check. My major concern is obviously my age and the life of the prosthesis and followup revisions. I am especially interested in the experiences of other young people and ho they see their future options.




02/07/99 05:10:49

Name:
Bill R
   
Location:
Santa Barbara, CA
Sex:
Male
Age:
53
Reason for Hip Problems:
Car Accident
Profession:
Photographer
Comments:
I was in a car accident in 1993 in which my car was hit close to head on. My car rolled and as a result of the impact I suffered a fracture in my left hip. THR was completed in Nov of 93, and I returned to SURFING in summer of '95. My MD thinks I am crazy but I started surfing in high school and never stopped.




02/06/99 21:06:25

Name:
JIM S
   
Location:
ROCHESTER, N.Y.
Sex:
MALE
Age:
54
Reason for Hip Problems:
PAIN
Profession:
exec
Comments:




02/06/99 20:35:27

Name:
Jean
   
Location:
PA
Sex:
female
Age:
54
Reason for Hip Problems:
traumatic arthritus
Profession:
homemaker
Comments:
After reading 4 of the books, I thought someone should mention the possibility of blood clots. My first hip surgery was reconstructive after being thrown into a tree when horseback riding. It took 3 plates and 16 screws to put Humpty Dumpty back together again. I was released after 24 days in the hospital and had to return after being home only about 24 hour with excruciating pain in the left leg every time I tried to walk. The ambulance took me back to the hospital and they checked the leg. The techni ian marked at least 5 locations where there were blood clots. I was put on blood thinners and kept flat on my back for two more weeks. A year after the first surgery I had to have thr because I could not sleep more than 3 hours a 24 hr period. I could nly take tylonol for pain as I had bad reactions to pain killers. The thr was such an immediate release from pain. I recovered from that surgery much faster and had no blood clots though they kept me on blood thinner for 3 months post surgery.




02/06/99 16:10:15

Name:
Ron H
   
Location:
Rio Rancho, New Mexico
Sex:
Male
Age:
41
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
none to date
Profession:
security
Comments:
Began having left hip pain sometime the beginning of last year. Pain kept increasing, sometimes, it was hard for me to walk. Finally, when I went for a check-up, I told my Doctor and she did an x-ray. She precribed Motrin 800 mg and said she didn't see nything on the x-ray. The next day her office called and they had scheduled me for an MRI, my wife being a nurse, knew something wasn't right. I had my MRI and the next day, rec'd a telephone call that I has an appt. with an orthopedic specialist. MY wi e and I went to the appt on Nove 12 (our daughter's birthday) and we were given the diagnosis. When I asked for a reassignment of duties at my job, backed up by the letter from the physician, I was told, they had no duties from and was let go. So I am un mployed at this time and have had to take a long hard look at my lifestyle and make some adjustments. I'm happy to ahve found this support group.




02/06/99 16:06:24

Name:
Debbie M
   
Location:
poplar bluff, mo
Sex:
female
Age:
49
Reason for Hip Problems:
acetabulum dysplagia
Number of Hip Surgeries:
bilateral
Profession:
registered nurse
Comments:
it's nice to share your story with those having the same experience. I was born with a condition called acetabulum dysplagia but I wasn't aware of it until I was around 42y.o. when my hip joints stared aching and I started having gait changes to accomoda e the pain. After living with the increasing pain and lifestyle changes it was causing for abt. 5 yrs. I started seeing drs. and the diagnosis was made. I initially saw 3-4 drs. who discouraged having thr because of my age. Finally after starting to lo e sleep because of the pain, and a great deal of functioning at work, (of course no one offered pain med or something to help with sleep) I found a wonderful young orthoped dr. By now my joints were bone-on-bone and I sounded like rice crispies when I mov d. He had so much compassion for me and said if it were him in my shoes, he wouldn't hesitate to have surgery. He said i would eventually need future replacements if I lived that long but who was to say I wouldn't go out and get hit by a car tomorrow. e said I might as well do it and have some good quality of life. He was the first dr. who really listened to me and believed in my pain and suffering both physically and mentally. He presented a good case for having it done, it took me abt. 1 day to thi k it over because major elective surgery is kind of like committing yourself to the gas chamber. As a nurse I've seen a lot of bloopers and complications with this surgery and I probably had a great fear than most people. We set up the surgical date, an he actually gave me some narcotics prior to surgery. I had the first hip repaired in June, 97 with a porous titanium implant. It was a lenghty rehab (3 months)and maintained all my weight on the other hip most of that time, which accelerated the degener tion of my "good"hip. In April 98, I had the other one replaced using the same method. I discovered all the little helpers you spoke about and am having a good recovery, with one problem that has happened and the dr. said was unusual. I was diagnosed wi h a stress fracture in the metatarsals of my left foot and am wearing a removable, immobilizing cast for six wks. My gait isn't normal and he assumes I walk more on the outside of my foot. I do no exercise other than what a typical person would do at hom to maintain the house and shop as needed. I've retired from work. I feel better and have no joint pain, although I do get what I would say muscle discomfort in my thighs from the stem placements. The dr. said this is the most common complaint from thi type pt. The hips are Godsends but in no stretch of the imagination are they "normal", nor do you get normal movement. I'd do it again in a heartbeat if I had to and am enjoying life so much more. The pros certainly outweigh the cons. Thanks for havin this site to air my story. I'd be gald to e-mail anyone if thay have questions or need support, Debbie Miller




02/06/99 13:22:39

Name:
peter s
   
Location:
bal harbour florida
Sex:
male
Age:
49
Reason for Hip Problems:
AVN
Number of Hip Surgeries:
#3 next week
Profession:
engineer/chef
Comments:
1 st one replaced 3 months after initial surgery due to dislocation, now waiting for #3,same side this only lasted 2.5 years. next surgery on 2.15 I hope this one lasts longer




02/06/99 06:14:04

Name:
delta1
   
Location:
Oklahoma
Sex:
male
Age:
49
Reason for Hip Problems:
Avascularnecrosis
Number of Hip Surgeries:
two
Profession:
civil service
Comments:
Christmas, 1997, I had back and hip pain for some years but always thought it was because of my job; warehousing for the U. S. Air force. Then around Christmas, I had degenerated to the point I could hardly walk. The Air Force medical service had me taki g Motrin and doing physical therapy (ultrasound). They didn't have a clue. Then I saw a civilian doctor who refered me to an orthopedic surgen. No contest! One x-ray and even I could see what the problem was; my hip (ball) joint had collapsed (left one) a d my other hip joint was crumbling! A bone scan and other tests made it very clear what the problem was. Avascular-necrosis. My bones in that area were dying. The doc scheduled me for the first replacement in July of 98. Man, I swore I'd never go through that again! Even tho relatively simple, I was in a LOT of pain afterwards. But they (Doctor Hollander and his staff) managed all outstandingly! Two months late , I had the second replacement. Even better! Doctor Hollander has to be the best orthopedicsurgen and all-round good guy in the whole state of Oklahoma!




02/06/99 05:46:38

Name:
Missy M
   
Location:
San Francisco, CA
Sex:
Female
Age:
45
Reason for Hip Problems:
conginital hip displasure
Profession:
Sales
Comments:
I sent an e-mail. Thank you for your wonderful site! I just found it and am going in for my 6th surgery on 2/11. It has helped me so much reading about other people and their problems. I am sucking it in and being brave but down deap I don't feel so b ave. Your sight has made me feel better. I am going to visit it every day until next Thursday. Thank You!




02/06/99 03:49:25

Name:
Bill G
   
Location:
Va.
Age:
48
Reason for Hip Problems:
dislocated age 22
Number of Hip Surgeries:
1-Aug. '96
Profession:
musician/teacher
Comments:
Should have done it sooner. However I fear having to have a repeat. I was looking for info on site about signs of wear/symptoms for down the road.




02/06/99 03:33:57

Name:
Diane H
   
Location:
Houston, Texas
Sex:
Female
Age:
50
Reason for Hip Problems:
Steroid Injections
Number of Hip Surgeries:
1 bilateral 2 dislocation 2 revisions
Profession:
housewife minister's wife
Comments:
 

Support This Site

Click the links below
to explore the
TOTALLYHIP web site

Shop at Amazon.com!

 

Support This Site 

1996-2011 by Linda May-Bowser

ALL mail sent to me is subject to be added to the newsletter unless marked PRIVATE!
All photos and printed materials on this web site may not be reproduced, stored in a retrieval system, or transmitted in whole or in part or by any means, electronic or mechanical, photocopying, recording, or otherwise, without the prior written permission of the author.